Signatories: 1295

(name withheld),
My husband has transverse myelitis. We need to find help for victims of spinal cord injuries.

Carey, Improv Yourself!
Thank you for the work you do MFR!

Adrian Nunn,

Carole Trainer,
Those of us with MS are willing to take great leaps to get better and enjoy life to the fullest. Still waiting.

Pamela Patterson, (UK) F.A.C.F

Rogerio Sa Fortes,
I'm proud of my 23-year-old daughter who, for 8 years, patiently takes her daily Copaxone and faithfully waits for the cure. It is not much time compared to most of you but, anyway... When?

(name withheld),

(name withheld), nursing student

Kari Holtmann, concerned citizen, friend

Janice Roark,
Ditto Virginia's comment below. Who wants to wake up each day not knowing if you will suffer excruciating pain all day or maybe you will be able to slog through another day. Right now the DMARDS are worse that the disease and 3 studies show they don't work anyway. So big Pharma can make gazillions of money off of people suffering supposedly treating symptoms not the disease. I choose to wait for a better option. I think I will probalbly die before that happens. But like Virginia said, for God's sake at least do it for the children!

Lucinda Coffey,
Tired of the bandaid approach of treatments for MS
Don't need more bandaids--give us a cure!

jeremy,
My partner has MS, which is robbing her of her life. Treating her symptoms hasn't been working. We need a cure FAST. It is so easy to give up on hope.

(name withheld), MS Patient
I am anxious for someone to come up with a way of replacing the myelin sheath that our bodies
attack, this has gone for many years why have we not found a way?

Pamela Rosinia,
What we need is research aimed at combating disease not our current research goal and main result of drugs to treat symptoms.

Karen Williamson,
I have had multiple sclerosis for 33 years - since I was 22 so, like Scott it has affected my whole adult life. When I first had symptoms everyone said 'don't worry, they're bound to have found a cure before it affects you badly'. They didn't. It would be wonderful if they could do so soon. MS affects so many lives including very young children and, of course, the families of those who have this miserable illness

leslie boedeker,
A cure for ALS at least a treatment....!!!!!!Stem cell research available to ANYONE with ALS!!

Geraldine Kaplan,

Bob Parisi, Full-time Disability
I was successful in business and fully understand the drive for profit. I truly believe that the medical industry et al has token interest in finding cures for chronic disease in this millenium. There is no money to be made in finding cures. Thousands of researchers out of work, untold numbers of financial market investors losing money as pharmaceutical stocks decline, Neurological professionals closing their practices because patients no longer need their continued flow of medications and the world of Lab Rats dries up and the economy crashes. I love the smell of CURE, smells like Victory!!! Stop feeding Wallets and start finding cures. Allow those who can recover to re-enter the workforce and become contributing members to society and their families once again and the world will recover.

(name withheld),

Camille,
Please find a cure in my lifetime!

Gretchen,
Scientists - Leave the box. Fly from the box and look around. Something must be found. Something must be done now. Can you tell me that hope exists for those who have reached the edge of that steep and unrelenting decline that is our end? Can you imagine the feeling? Never wanting to circle that horrific drain, yet staring it squarely in the face each day? If no cure today, when? All too soon, it's too late. Enjoy your life's work in the lab. But know that if it isn't making the cure for or reversing the damage done by MS, your life is being wasted, like ours are. Don't go there. Flee. Fly away.

suhelem velasquez,
Nobody knows what its like until they live through it. Nobody stands in a line asking for this problem but since its here we stand in line together asking for help and understanding and I that someone on this planet has the cure but doesnt even know it.

Andrew Durso,

Karen, CCSVI for MS

Carola Barton, Geneva Global

Cathy Douglas,
We are now living in a time where pharmaceutical companies don't want a cure. Only band aids so patients have to keep paying for "medications" the rest of their lives. Drugs only made me worst, so I stopped taking them!

matthew smith,
when words fail there will be only 1 option left.

(name withheld),
I was never so badly off with my MS as I have been while I have been treated with a DMD, Copaxone. How expensive it is, and for WHAT? I need a cure, not a symptom represser which does not even work. They need to work on that, not on something which will deal with those symptoms.

Lisa Alkana,
Five years ago, I lost my home in California and a successful career in the entertainment industry to the symptoms of MS. Both Avonex and Copaxone made me worse, not better. I can no longer walk, stand or even straighten my legs. I live in pain every day.

There are no cures for MS or other diseases because the incentives are to keep the research and pharma trains rolling as long as possible. The rewards are not in helping patients, but in making them believe they are being helped, so they can help themselves to our money as long as possible.

The Scientific and Big Pharma ilk make a lot of noise, but it is, of course: "A tale told by an idiot. Full of sound and fury. Signifying nothing" (William Shakespeare)

We need real progress toward real cures, and we need them yesterday.♠

Sue Garner,

Lisa Pavkovic, the Myelin Foundation

Marc Stecker,
I'm in MS patient who knows all too well the barriers in place between research advances and actual clinical treatments. The medical industrial complex has turned diseases into multibillion dollar a year industries, a further impediment to real progress towards cures. I haven't the Wheelchair Kamikaze, and you can read my take on things at:

http://www.wheelchairkamikaze.com/2010/04/medical-industrial-complex-sick-people.html

(name withheld), private
lets spend the same on research as on pharmaceuticals, then we'll get somewhere.

Virginia,
CFS/ME & Fibromyalgia: One stretch of time (a week, a month, three months) during which life is unbearable, not worth sticking around for, followed by a stretch of time (a week or two, a few days) during which life is just bearable, followed by the one cruel day when life is stunning, beautiful, and you discover hope all over again, which you misplace eternally when the cycle begins anew. I don't think help will "strike" in my lifetime. But go for it. For God's sake, find something for the children.

(name withheld),

Chris,
For my Mom, and her daily battle with ALS.

Something needs done...and done NOW!!

Lenora Kinney,
ALS is killing my husband and so many of my new friends...Do something,NOW!

Renée,
Sorry i dont speak english but PLEASE HELP US we need you

suvidhi jain,
this is like hell........

cathy curths,
Please do something!!

Tyler Smith,

don ceppi,
If asked by a more intelligent civilization, "What has your society done to relieve the suffering of others?" I would proudly cite the unselfish and kind works of Mother Theresa and all those individuals who have found the courage to consider others' needs before their own.

If questioned why so many have been neglected,
I could only hang my head and shamefully whisper words like "GREED and POLITICS, RED TAPE and
TOO BUSY".

This is cruel. This is crazy.
Just read the frustration and anger.
Imagine being in such pain, alone and dismissed.
THIS IS UNACCEPTABLE!

Help if you can...

(name withheld),

Barbara Mullis,

Gayle,
I was shocked to see there wasn't more progress on Mylenineation Disease even after Lorenzos Oil came out. Please stop halting progress and do what is needed to increase and speed up progress.

Leon Peek,
It appears non-profits have lost their main goal. All window dressing with no substance related to the illness they represent. Enough of this game of patty-cake. Through fundraising and grants, you got an office, desk, phone, make them all work for us. Why bother with a spokesperson that has nothing to say. It's ok to get mad, I am!

(name withheld),

Paul Cloutier,
CCSVI diagnosis and treatment for MS patients NOW, and covered by healthcare. NOW NOW NOW

Chuck Hummer,
This manifesto makes so much sense to me. As one afflicted with ALS I have asked this question myself and now I am so pleased to join this movement. May we find the answers that we seek.

Karen Murphy,
Where are the cures? Billions of dollars collected, where is it

(name withheld), University of Michigan
As a scientist-physician and spouse of a MS patients I support this patient's manifesto.

Catherine Thomas,
I have been diagnosed with MS since 1991 with RRMS. It has now progressed to SPMS. I was on Betaseron for years, but now it is not working. I have recently gone off of it and Solu medrol in order to be on Tysabri. So far, it has not worked.

If I went to a vascular surgeon, and did not have MS, the surgeon would do tests to see if there was a problem. The surgeon would find a problem in the neck and fix it, but since I have MS, I could not even get in to see the surgeon. I think that is discrimination against patients with MS. The drug companies do not want to lose all of that money.

Think of how much money could be saved in health care costs if the MS patients were tested and had the procedure done. It would be monumental.

laura, just me

Dave Wiggins, None
Diagnosed with RRMS in 2001, put on Betaferon. Diagnosed as SPMS in 2009, still on Betaferon although in my opinion has done nothing to help slow progression!

(name withheld), MS

Nicole Gélinas,
I'll do it in Frech, dac?

J'ai la SP depuis 23 ans, j'avais 21 ans. J'ai perdu la vue d'un oeil et celui qui me reste est à 20/40. Ma neurologue veut me changer de tmt (Rebif depuis 10ans).

Je demeure seule et si la tendance se confirme.... tout va en s'accélérant après une vingtaine d'année d'atteintes.

JE NE VEUX PAS DEVENIR AVEUGLE!!! Est-ce un mot que nos politiciens comprennnent? AVEUGLE

J'ai un bacc. en administration mais il ne profite à personne! Je reçois 811 $ de rentes d'invalidité mensuellement pour rester à la maison. Ah Ha Ah!

Si le gvt ne se réveille pas, dans les prochaines années je devrai, comme plusieurs d'une trentaine d'années y logent déjà, demeurer dans un foyer pour personnes âgées!! J'ai 45 ans tout juste.

Je voudrais crier au secours!! Mais il semble que mon triste avenir est dans les mains de ceux à qui profitent mon état de santé!

sharon, none

John Charbonneau,
Diagnosed with MS '98, at first relaxing-remitting, now secondary progressive with power wheelchair, power lifts for transfer, and PAIN 24/7, tried everything, hoping for Liberation...do I have to leave Canada?!?...can't wait, only my left hand and arm are working...hurry, please!

(name withheld),

DL Gielniak,
I have MS and would really like to know when and where testing for ccsvi will be or is being done.
Treatment would Bless more with some increase in the quality of life.

Arlene Hubbard, Hubbard Foundation

stephane thibault,

(name withheld), N/A
I was diagnosed with MS 19 years ago - before I even started my first career! I kept the MS quiet and I faked it 'til I made it, but then the job got too tough for me physically. Time to change career. New career as a patent examiner was cut short because even that got too tough. Career number three was a far cry from what I had worked so hard to achieve. Then the recession hit. Now no job, but I hope my Liberation Procedure will help me get back to living a more 'normal life. Time for career #4 :-)

(name withheld),
I was recently diagnosed with EM, and I would like to know more about CCSVI.

(name withheld), MS patient for 25+ yrs
I have had MS since I was 23. I'm an old lady in my 50s today. I've been seen by some of the best Neurologists in the USA. All any of them offer is one of the pharmaceutical meds that come with a list of side-effects, including causing suicidal ideations, headaches, depression, flu-like symptoms and more. The suicide rate for pwMS is high, due to the progressive nature of the disease. FINALLY along comes a treatment -CCSVI- that has given new HOPE to hundreds of patients. The NMSS, big pharma and Neuro's do not care about MS patients getting better, or they wouldn't be so against MS patients having their *blocked arteries opened.*

I wonder if an MS patient was found to have clogged arteries in their heart, would the NMSS butt in and say NO! Cardiologists have no business treating MS patients?

It all boils down to the almighty dollar and BILLIONS are spent on MS "disease-modifying meds" each year that do not stop MS OR the symptoms, many of which are invisible.

Barb,
PPMS, MS Sucks!

anna derbyshire,

Schäfer, private
I am waiting and waiting in terms of a useful therapy of my secondary progressive MS. However, there might be too many people who are interested in pharmaceutical achievements than in our health. Hopefully, the "liberation treatment" by Prof. Zamboni will prevail against selfish interests.

Sharyn Speckmann,
My son has MS and no ms drugs have done anything. He has gotten worse in the two yeas he has been diagnosed A wheelchair in two years. Liberation treatment is all the hope we have

monika,

liutauras,

Laura Smith,

Karen Gordon,
I have MS and I would like the CCSVI treatment in Alberta... I have had MS for 17 years.. please help!!!!!!!!!!!!! Karen Gordon

Glenys Wood,

Debbie,
I don't think I will donate anythging to the MS society anymore.Alll that money could be used to "liberate" amny of us!

Gaye Moran,
I have MS and RA. I am upset about CCSVI testing and treatment not being available for MS patients in the US and Canada.

Patricia Provenza, individual
We can inject our faces with rat poison, we can inject ourselves with pharmaceutical poisons but I am not aloud to try to cure myself. In this age of modern science and tecnological advancement how is it they haven't CURED anything since polio.Clearly it's more profitable to treat something rather than cure someone. The money is in the comeback.

Penny Setterfield, CCSVI
I have MS and I want the Liberation treatment because I also have CCSVI - tested in Montreal in March. I am not being allowed this simple angioplasty because I have MS and for no other reason. This is a real proceedure used safely for the last 25 years and does not need to be studied anymore. Allow us to decide if we want it.

(name withheld),

Karen Fielding,

Vickie Rowe,
I have MS. The CCSVI Liberation Treatment should be made available to all! We all the the right to live our lives without being in the prison of MS! This has been shown and proven to help. Please help.

Michelle S.,

Stephanie MacLeod,

Jonathan Lee,

Jennifer Hornyak,

Dawn,
Unlike many people who suffer from MS for years, decades, I have only "had MS' for 8 months and can't imaging how some suffers are able to "live" with MS for so long.
At 42 MS changed my life and those folks involved with the MSS, Neuro's or Goverment should realize, this could happen to them.

Gisselle Blackwell, Individual
I have taken Avonex, Copaxone, Rebif, Methotrexate, Neurontin, Solu Medro, Prednisone, I've even done IVG Treatments all to NO avail. For 10 years I was treated like a guinea pig all the while my Dr. allowed me to just get worse and worse. Thank God I took matters into my own hands and I'm doing way better now due to diet changes and most importantly due to a cheap drug that's been around for years and has proven to change life's of people with MS. It's called LDN (Low Dose Naltrexone) which is a compounded medicine made of Naltrexone, FDA approved for alcoholics and addicts. It is well known that off-label drugs are used to treat MS all the time, as evidenced by me taking Methotrexate and Neurontin when I didn't have either cancer nor Epilepsy, but since LDN is too cheap to bother with they are NOT moving on trials to make this a widespread MS drug. Instead they concentrate on these costly poisons to hurt us more than they help. Now this new promising CCSVI treatment has come around and instead of starting to look into it for its merit, they are looking into it in the hopes of discrediting the idea of MS being connected with vascular issues. Do people have no heart?! Do they not care how much we suffer, a lot due to the negligence of our "healtCARE professionals"?? Ludicrous is what it is and I hope that this makes some sort of difference!!

(name withheld),
Please help speed treatment for CCSVI to multiple sclerosis patients. I have had the treatment and the changes in my life are significant. All pwMS deserve this healing and these improvements.

(name withheld),
My daughter has RRMS and wants to stay in Canada for diagnosis and treatment. Please make this happen.

Vicki Sauble,

Jennifer McGowan,

(name withheld),
CCSVI is the greatest discovery and the previously dead community is now being awoken there are so many impediments to getting this relatively simple procedure. Why?

CCSVI now for everyone.

Jim Bragg,
I was diagnosed with primary progressive MS in December 2006, after many tests and medical professionals. My symptons are not severe as others, but are worsening. It would be nice to be able to get the ultra sound done to see if actually have restricted or blocked veins, however can not get that done either.

(name withheld),
Thanks for doing this.

(name withheld),
with MonSter

(name withheld),
what is needed now is the allowing of the liberation treatment for M.S.

Nicki Watts,

lori amen,

João,

Roberta Vettorel,
CCSVI NOW, this is the CURE!

(name withheld),
I have been diagnosed with MS since 2001 but have had symptoms for many years prior. Where is the cure for all of the young people who were cut down in their prime, not able to do the things they want to do and not able to enjoy life as they were used to?

(name withheld), MS sufferer
I find the money spent ridiculous. My career was taken away from me due to MS. Why not let each patient decide for themself what they want. I do not want to take meds anymore, a simple procedure has been found to help with my MS. They say it is not a cure, but it would greatly improve my quality of life.
Let me decide

(name withheld),

Jean Milne, http://carerspovertyalliance.com/

Christina Dmytruk,

Margaret Connolly,
It's not just about MS but all major illnesses that are "lucrative " for big pharma. No one is suggesting a life without pharmaceuticals but certainly the option to choose. Not all cures and therapies should be commercially driven.

Cah, csvi-ms.net
I think there has to be a profound change in the way research is done. A researcher gets money for doing more research, not for producing results. Thus, the majority of research studies end with the conclusion "more research has to be done". This will go on forever if there's no change in the system!

Michelle Wheeler,

Val Hoenecke,
I am an MS patient liberated on April 28, Katowice, Poland. Been better ever since. This is it folks! More people deserve this treatment.

Brian Chambers,
Diagnosed with Cervical Transverse Myelitis, May 2009
Diagnoses changed to MS Oct, 2009
Guess that makes me a 2 time loser!

Sebastien Cyr,

tracie renshaw, world health

Mary Addison,

james henderson,
Sick of pharmaceuticals. Never realized what you have till its gone

(name withheld),

Richard O\'Connor,
I was diagnosed with relapsing remitting MS in 1990. I have an identical twin who plays hockey still, and we are 63. He has shown no signs of MS. I've tried Avonex and Betaseron, and each has caused to go through surgery. NOT FUN!!

Arne Kaminsky,
MS dx 1997 - NO CURE
CCSVI dx 2009 - TREATMENT PREVENTED

From Dr. Rindfleisch in 1863- MS as a disease of "venous congestion" http://www.facebook.com/notes.php?id=110796282297&style=1&start=100&hash=ccb8ae1de35513b9c0155069438be110#!/note.php?note_id=145324627210

Caroline Hart,

Katherine,
I have Multiple Sclerosis (MS). I can't take the current options because of allergic reactions and elevated liver panel. We all need better options and a cure!

(name withheld),
Please let CCSVI test and procedure to start now.
Us with MS need this now.

Julie Row,

(name withheld),
MS has lived with me for 26 years . We have only seen drugs with a very low effect rates with many side effects . Yes I agree time for a change .

CCSVI NOW

(name withheld), none
Our daughter has myelin sheath damage. Please do something!

Marly J Lund, patient
dx: 10/78
I'm 61 now, in a w/c.

Kim Wyrick,

(name withheld), Cura
Disculpe pero no se Ingles, soy pasiente según los doctores me uno para que logre la cura, y que podamos cubrir los gasto que se aproxsima en esta cura. Mientras todo sucede seguire orando por todos los cientificos y por nosotros. Tenemos que acojernos a lo que Dios nos da,no nos demos por vencidos. Sigamos en la lucha pronto la venceremos.

polarchip, acromegalybloggers.blogspot.com
I have a rare diseased called acromegaly, and I have faced so many of the same frustrations with the medical industry that the MS community describes. I am looking for a REAL CURE, not a mediocre treatment that I will have to maintain for the rest of my life.

Thank you for doing something about this! I believe that your organization will bring us more cures - for many diseases - sooner.

Hilda Colls,

Dr. Eileen Morel, Interamerican University

maria de Lourdes Rivera Cruz,

Yolanda,

Mrs. Eileen G. Curras widow to Hernandez (WWII), O.V.I.D.A., Inc.
"Yo tengo esclerosis múltiple desde el 2000 y los pacientes no reciben servicios de los billones que el gobierno, Corporaciones Sin Fines de Lucro y los dólares de la industria que se gastan en estudios y desarrollo de tratamientos de nuevos pacientes. Los científicos académicos, los fondos del gobierno y agencias reguladoras, estudios de fundaciones de enfermedades sin fines de lucro, compañías comerciales biotecnias y farmacéuticas y personas en los negocios deben agresivamente buscar nuevas maneras para acelerar el paso de estudios médicos y el desarrollo de nuevos tratamientos para pacientes para billones que viven con enfermedades crónicas que no pueden esperar más."

I have Multiple Sclerosis and patients are not getting adequate return on the billions of government, non-profit and industry dollars being spent on the research and development of new patient treatments. The academic scientists, government funding and regulatory agencies, non-profit disease research foundations, commercial biotech and pharmaceutical companies, and entrepreneurs should aggressively seek new ways to accelerate the pace of medical research and the development of new patient treatments for the billions living with chronic diseases who cannot afford to wait.

Sarai Torres,

Rose M. Arroyo Mendez,

DELIA, MS PR

(name withheld),

Mayra Olivencia,
Four persons in my family, including me, have MS. Time is passing and we need realistic alternative to improve the diagnoses process and treatment. We are productive people in our society...and we want to keep doing so.

Milca Rivera, Veterans Health Administration
I totally agree! Although they have made a lot of advancements in the treatment area, the diagnoses process has to be improved.

NORMA VAZQUEZ, UNIDOS
We don't want maintenance meds..WE WANT THE CURES NOW!!!!

(name withheld), Private
My daughter, a beautiful,college educated, talented dancer was diagnosed with MS and has been living with the disease for more than 10 years now. She can barely walk and my heart breaks to see her bravely face each day, clinging to any little ray of hope for a sign of a cure. She can't go the CCSVI route, having been scanned and declared a non-candidate for the proceedure.She now has her hopes for a cure pinned on the reshearch being done by the MRF. Please expedite your work!

Melanie Mitchell, desparate mummy!!
I am a single mum, recently widowed at the age of 30, my son is only 6 and I really hate hate HATE the thought of him watching me deteriate!

He has already missed out on so much!!

I pray and wish all the time that the cure is coming, my son needs his mummy instead of making do with half a mummy!!

Carol Dawson,

(name withheld),
CCSVI is being done in other countries. Why not Canada......the pharmaceutical companies control everything. They would lose trillions of $ if CCSVI was done in Canada. Plus some drs. would lose their kickbacks from the drug companies. I do believe there are a few "honest" drs. who really care about their patients and practice the oath they took.

Mary Brasher, none
I believe the cure is close. I just hope I see it in my lifetime. I fear for my children and grandchildren being susceptible.

Elina Menendez-Kelley,
We figured out how to put a man on the moon, surely we can do better at finding cures!

Elizabeth Hodge, M.S.
I was diagnosed 26 years ago with Multiple Sclerosis, we are no further forward with new drugs..... well i havnt been offered any.

belinda wilson,
Change needed now!!!

jenni buyuk,
my sister has had MS for 26 years and nothing has changed, she has never been offered any medication nothing at all, i hope and pray this petition can help see the wonders of science move forward quicker and help all the sufferers in the World not just with Ms , after all we can send Man to the Moon!

Jaimee,

Miss Louise Turnidge,

(name withheld), kings lynn branch norfolk
PLEASE HELP US NOW......

(name withheld),

(name withheld),
The nations of the world with the economic and scientific resources to find a cure for diseases like MS have a responsibility to do so.

carl,
I think accountability has been absent over the prior decades with regards to cures. Success is not how many failed compounds one can fill the pipeline with in order to continue a revenue stream. Billions have been spent, so money is not the problem. The problem remins to be a lack of sustained, focused, results based effort with s fierce sence of urgency. Putting it frankly, it's way past time to deliver on a cure

(name withheld),

Steven Hollifield,
31 years old living with Progressive relapsing MS. Work as a chef, and the this disease is taking away both my love and passion, as well as my livelihood. Scared to think what state I'll be at in 5 or 10 years if we don't figure out something quickly.
Stay strong everyone, and keep pressing this issue until we get results.

Mary Rafferty, infor on yours please
I'm completely fed up with the Government period.I'm blessed that things are safe but scared not knowing what the future has in store for us.I believe peoples behavior anger and reactions have everything to do with it and they don't have no way to figure anything out. I would love a packet of information on your organization if possible. 908Central Ave Glendora NJ 08029 hope to hear from you my number is 856-939-3379

(name withheld), none

mary williams,
after 29 years os=f m.s. i am excited to heae=r there may be some progress on curing the orogression of the disease,pleasehelp us help outrselves to halt this devastating disease.my new grandson would apreciate thisalso,he will make his appearance on this earth on jy=uly 6th 2010.just a few weeks in the future.thank you for your efforts mary williams

(name withheld),
Fibromayalgia sufferer.

James Damato,
We need a cure for MS....NOW

Deborah Spence, I would have one if I wasn\\'t so sick
Most of my illnesses are incureable and unexplainable as to how I got them and they the medical establishment can't tell me how to treat them so I live each day let me rephrase that I exist each day getting through substandardly way below standard. Why??? Because??? Whats the hold up??? When Will Help Come??? First it was depression, then Epstien Barr Virus, Then Conjestive Heart Failure, Then Fibromyalgia, Then degeneratic disc disease, and the list goes on but not my life. Now the latest added to this log list of ills is an arachnoid cyst that requires brain surgery and as bad as that sounds, finally something that they can do something for.

(name withheld),
please find an ms cure......keep smiling

(name withheld),
Just read the newest Newsweek article. It parallels the cornerstone of the Myelin Repair Foundation. The USA is so out of the loop when it comes to updating "procedures." It doesn't have to follow models that were used 20-30 years ago. Please used research money in a more effective way. Force/encourage researchers to share info/results. The old model only hurts those who need results the most.

(name withheld),
We need a revolution!

Janie Cordray,

Lindsey Cotter-Hayes,

Neva Allen,
I just want my life back again. Is that too much to ask! Disabled with MS.

(name withheld),

(name withheld),

Jenna Edginton,

Todd Sebben,

Mary Lee Mohrlang, Individual

Antonia Palmer,
My three year old son is currently fighting neuroblastoma cancer. The treatments he goes through are painful, heartbreaking, and soul destroying. This disease has a high rate of relapse where there are little known treatments at this point. Too little research is being done, and what research is completed in this area needs to take their results to the public.

shoshanna r. fahima,

Valerie Barnett,

(name withheld),

Richard Nichols, Broken from MS
Imagine human roles to be reversed, the only thing different is that I would be doing everything to help you. "Morally"

anil kumar kapoor, saipemtriune engg. pvt. ltd
Can a non functioning PTH on female baby child by birth be cured & start functioning.

Heather Anne Steiger, disabled with MS
I don't want to worry anymore about when I am too sick to be able to clean myself up. I don't want to have to worry about my teenage son having to put me on the toilet or feed me. I just want what every normal person has: the opportunity to lead as normal a life as I am able Please help.

Cindy Broder,

tammy kriebel,

Mary Foust,

gail haimes,

Dorothy Pergola, Max International

(name withheld), (Major cancer research center)
Promising basic research conducted by scientists at universities and research institutes often faces a "Valley of Death" following the discovery of promising new therapeutics - simply because their discoveries are considered too early-stage for a pharma to in-license, and too early-stage for VC funding. Thus they languish, never fully vetted in a preclinical drug development process. It is true that newly discovered drug "lead candidates" face a long road - with the odds stacked against them - to enter the clinic, but it seems such a waste that we fund some of the best research in the world - but cannot fund the development necessary to kick them into commercial development, where they can actually affect patient care.

Please - let's find a way to finance some promising leads across the "Valley of Death"!

(name withheld),
Nobody is talking about Merkel Cell Carcinoma....a killer! I am a two time
survivor, but the research dollars are
in pennies and no one talks about getting
checked for it,only melanoma. Wake up,
medical people!!

patience lowe,
sure would like to be able to pick up my grandchildren and not be afraid of dropping them and run around with them at the park. falling and mental confusion and exhaustion balance problems not to mention living near the bathroom,visual problems, emotional instability, and neuromuscular weakness are not pleasant and interfere with every attempted activity. MS is a thief of lives. Add up how much the world loses in precious resources because of this disease and how much it has to gain by finding a cure. Less money on fluff and more on research.

sara meyer,

Francis Ankrah, Store Keeping
Sir
it was about one ago that I tested and shown pobitive.I have been attending hospital and up to now no test have been done.Although, I have been taken the medicine that my doctor priscribe,
Please, kinkly advice me
Thakks

Cindi Guthrie,

Jessica Smith, Story From a New Friend

Betty Sumner,
CCSVI offers a new perspective to the cause of MS. Why hesitate to pursue this new line of thought. Move quickly on this now!!!

(name withheld),

Bob Paxton,
AThis is a critical issue that must be addressed

(name withheld),

(name withheld), ALS caregiver

Maureen Cavan,

John Shelton,
My mother was diagnosed with MS about 10 years ago. I was younger and never really thought much about it, but as I grew older I began see the stress and discomfort that she has to deal with every second of every day, and every time I see her like that, I can't help but to feel helpless. It kills me to know that while my mom is trying her best to make her life as enjoyable as she possibly can, there is a possibility of a cure so close. But it may as well be on the other side of the universe. All I want is for researchers to stick to one project at a time instead of skipping from place to place... This medical musical chairs needs to stop!

Terrence Reed,

(name withheld), USN (retired)

Gwynne Hickman, PCUT
I am committed to gaining access to experimental drugs for people with terminal illnesses, specifically for, but not limited to, ALS. Forget the double-blind studies and placebos, the only variables should be dosages and protocols!

John Higgins,

John Higgins, J. Higgins

(name withheld),

G Prater,

(name withheld),

Scott Harris,

Erin Thames,

Scott Harris,
ALS is a brutal disease that needs to disappear from the human record. Let's give research and treatment the priority it deserves.

Bev Munt,

Robin Brock,

(name withheld),

Sally Meakin,

Lindsey Smith,

(name withheld),

(name withheld),
We need to find a cure for ALS.

Robin Blunt,
My good friend Tom Ohlson suffers from this terrible disease. We need to find a cure now!

Cyn Shelton,
I was diagnosed with MS 15 years ago and forced to quit work and go on disability 10 years ago. My husband is a saint and is so loving and supportive, but the guilt and frustration I feel about the extra burdens my disease puts on him, well, thank God for my antidepressants. We need to get off the stick and start aggressively resolving some of the regulatory issues hampering approval for new treatments and research for a cure.

Beverly Rapp,
My mother passed away from ALS 8 years ago and I have not seen any "new" treatments since then. My friend who just turned 50, just got diagnosed with ALS and I do not have any good news to share with him!

Dave Boll,

Marnie Naples,
Diagnosed almost 4 years ago and will not be defined by it! Mylen Repair needs to be researched.

Chris McCleskey, none
I have RRMS and I see the failings of the current systems. Better treatments sit and flounder unable to complete trials while big pharma pushes through treatments that are potentially more harmful than the disease. I'd like to see some cost regulations placed on big pharma as well. Medicine is not a "what the market will bear" it is a capative market without any controls on the expanse of cost.

(name withheld),
All diseases need cures.

Deborah Weise, Self
Sad that so much money and time has been spent, for so little.

pam Bono, Pam Bono Designs

(name withheld), Duchenne Ireland
What other product would take over 10 years to make and leave the customer having paid for it and not received the goods and in the end no guarantee of ever working let alone get to be marketed.

James G. Kane, Prader Willi SYndrome Association (USA)

Cathy Manners, n/a
I first evinced M.S. symptoms in 1985, 25 yeas ago. The first ABC-R drug (Betaferon 1b) became available in Australia in 1996, I had bad side effects which took 12 months to settle and just when they became tolerable my neutralizing antibodies were too high so the Government took it away. I had to wait for the next drug to be available etc. etc.

I've tried most of the drugs now but as I'm secondary progressive I'm not eligible for much now so I'm on nothing again. I have spent 00s of scarce dollars desperately trying every new credible treatment, volunteering for any drug trial I could (they stopped the only treatment I had that worked Linamide due to safety concerns etc.)

When I was first diagnosed I believed in my lifetime they would find a cure. That was 25 years ago they still don't absolutely know what causes M.S., they have mostly nasty injectable treatments, can't reverse the damage and patients like me are despondant and progressively more disabled.

So I want to know WHERE ARE THE CURES?? Can they repair the damage to my brain and mobility? How do I regain my formerly outstanding career, undo the total annihilation of my finances and capacity to engage with society and return my youth??

Every time scientists discover a promising new step they say it will take another 10 years to test and even then it doesn't make it to Australia.

I was very bright, hardworking with great promise, 10 years of tertiary study, 5 degrees and 20 years work experience. Please help me regain some of it. Help me now, before I turn into a faceless grease blob and dribble down a crack.

(name withheld), MRF

Justin Wilbert,
We need to put some money into ccsvi research for multiple sclerosis. Other countries recognize the promising results already happening, why is America dragging it's feet so badly? Is the MS society that scared of actually finding the cure? I realize that would pretty much put them out of the business of fleecing the sheeple of america from giving them any money------------ but I'm ok with that!

(name withheld),

(name withheld), Individual

John Dean,

(name withheld),
We want research into repairing myelin and finding a cure.

(name withheld),
We want research into repairing myelin and finding a cure.

Jerry Kaplowitz,
I was diagnosed with MS three years ago and have often wondered, where are the contributed dollars going? Why haven't new medicatons been developed to help my symptoms?

(name withheld),

geraldine murphy,
We can't afford to wait, it's been 14 years.

Bill Byford,
I have MND/ALS and we need a cure

Annette M,

roger cawiezell, ms patient

Klein, Tanja,

Nadine MacNeil, MS
I have MS and I am very upset with what has been going on.

Liziard,

rachael.m.thomas,
We're waiting, as our bodies break down, for our 'cures'. Help us please!!

Ghazal, Encinitas Learning Center
I belive there needs to be more collaberation among scientist and other fields

(name withheld),

Christine Goulding,

(name withheld), pals

Stephanie Lyn Carlough, Hide & Seek Foundation for Lysosomal Disease
Kudos to you. Thank you.

Mike Roach,
I have ALS. Nothing has changed since Lou Gehrig's days--70 years ago! It's time for a meaningful treatment or cure!

ruth, none
i am a mom looking for cures for my son who has a.l.s.

(name withheld),

(name withheld), us
please speed things up

Jimmie Branham,

Christy Alexander,
I have ALS (Lou Gerhigs disease). I am a 43 year old mother of 2 elementary school aged children. I am in desperate need of a cure so I can live to raise my children.

(name withheld),
Hoping for some kind of miracle drug for ALS SOON!!!!

Laurie Sain,
Eat more natural foods, get exercise, and Fight For The Cure! A woman with lifelong asthma and depression

(name withheld), retired

mary,

Jim Roediger,
As an MS patient, I resist the temptation to give up on ever leading a fulfilling life. It seems that anything that comes out of the promising research takes years to implement and we just don't have that much time. I am tired of feeling helpless to effect change. We need our voices to be taken seriously, but until there are results, I am skeptical. Prove me wrong, please!

Bettina Bergh,
I have Madelung's Disease [also called Dercum's Disease and Bilateral Symmetrical Lipomatosis], Lipedema, Sarcoidosis, and Type2 Diabetes.

Fortunately the Fat Disorders Research Society and Dr. Karen Herbst are doing some research on the Madelung's Disease, but much more needs to be done!

I think that it is great that the NIH is now working with folks with major disabling multi-system symptoms who have never been diagnosed diseases on a special new unit. I pray that these folks will finally get some relief...

(name withheld), Member NMSS

(name withheld),
5000 people a year get ALS, and all become disabled. A cure is cheaper than 3 to 5 years of disability payments for 20000 people every year. I want to be alive to see my child finish high school.

Sabrina Vercueil,

Jen Barton, mom
My daughter has a rare neurodegenerative genetic disease called Niemann-Pick Type C.

Karen Jones,
Where does all the billions of dollars go each year that we donate to these causes?Why have no cures been found.Maybe because if cures where found there would be no more money.There are too many good people out there suffering.

Evie Miller, Self
I live in pain everyday! Have NEVER been diagnosed with Fibromyalgia, But I have heard my symptoms are close to it! I have Degenerate Disk Syndrome, and Scoliosis Which have their own effects...But I know people that live with ALL sorts of problems and never get the RIGHT help for them!! The person that sent this to me, is a sweet person who has been living with this for a long time & For her & other people, & me, Lets see what WILL & CAN happen to help this all out!

Melissa Melcheck,
I suffer from fibromyalgia along with hundreds of thousands in the U.S. alone. We need a cure NOW not in fifty years! We want our lives back!

Angela Sawatzky, none
With type 1 diabetes and fibromayalgia, enough is enough already. I don't believe that fibro is a disease in the classic sense I think it is a lack of dopamine in our brains from overbearing stress over a long period of time that breaks down the barriers we have naturally and lets all of that overwelming pain in. Research THAT. develop a plan to help us regain our bodies back! not just drugs!

(name withheld),
I have lupus, RA, Fibromyalgia and a lot of similar autoimmune diseases and I do not feel we are getting the adequate medication we need. Let's step it up a little!

D. McCalister, The human race
I have MS and am tired of it. It's time to get the drug companies to take care of the people. We have been taking care of them long enough. Costs go up, but nothing seems to be getting done.

Brenda Smith,
One summer 14 years ago, I began having severe pain throughout my body. Blood tests showed nothing. That was the beginning of my life with Fibromyalgia. I have been in constant pain for the last 14 years, have tried more medications that I can count, and NOTHING takes the pain, fatigue, muscle stiffness and all of the other horrifing symptoms away. Nothing. For 14 years. Being in constant, ever changing pain every day, not being able to sleep without getting up 3-5 times a night. For 14 years. Not only is there no cure for this, there is no medication that even helps me to live any resemblance of a normal life. I am just one of millions in the US that suffers from Fibromyalgia. Millions. Who every day wake up to such terrible pain and stiffness and fatigue that can not be explained to you. For me it has been a progressive disease. From being a healthy 35 year old woman with a husband and children and a life to an obese, woman who needs a motorized chair and handicap van to go anywhere. To a woman who for months is house bound and bedridden because I can not MOVE my body, because I am so DEPRESSED my spirit is gone. Just what are you doing for me and the millions like me. What are you doing for the newly dianosed children, teenagers, college students, young adults, men, and the 35 year old women who wake up one day living in a nightmare that someone coined as Fibromyalgia. The invivabe disease, the "it,s all in you head" disease. How many times must we be told it is not real. How many times must we tell you about this terrifing disease before you actually find us some real hope with a medication or a cure. Think about me, just one person. Am I not worth your time? Those of us with Fibromyalgia will no longer allow anyone to make us invisible. Do something NOW!

Colleen Arthur, Self
People suffering from Fibromyalgia and CFS need more research for a cure. It's unfair to live in pain every day of our lives. The Doctors are not education enough on treating us therefor we are not getting any better. I would like to see more awarness to these disease via media and print ads. We have money going to make a man erection last longer but no money going to Fibromyalgia. Sounds crazy to me and I want to see change.

Rebecca Merritt, none
i have fibromyalgia severe loss of functioning day to day. my back pain is so severe i can't stand to sit or be up. I am at a loss now of where to turn. I have high hopes for a pain specialist to manage my diseases but am so afraid he won't be able to help me.

Donna Korzun,
I have had fibromyalgia for more than 14 years. It has interfered with my daily life, my personal life and my work life. With my life!!!!! I have constant pain. Where is the research!!!!!!!!!!

(name withheld),
Why is LDN being hidden from people suffering with FMS, CFS & MS!!?? What else are you hiding in the name of keeping the money train chugging along?

(name withheld),
I've been in pain since 2003 and it continues to get worse every day. I'm already to the point of taking too many drugs (narcotics) that are beginning to have less and less effect. I have a new grandson who lives about 300 miles away and I don't want to live in pain like this, or worse, because I'll miss out on his entire childhood. Please find better cures that are natural and easily accessible to someone who lives in a remote area. It's too cold and expensive, here in the North, to have a pool and physical therapy is quite a long drive too. PLEASE HELP!

Larissa Parreira,

Theresa Seek,
I have fibromyalgia and chronic fatigue. There is no cure and no meds that truely work for this. I live in so much pain day in and day out. Why won't you help me? If I was your mother then I'm sure you would do all you could to help. Your wallets get FAT while I suffer everyday in pain. What if God was one of us?

Grant Eubanks,
LETS GET WITH THE PROGRAM AND DO THINGS RIGHT FINALLY.

(name withheld),

Hayden Farley, multiple sclerosis
I have Multiple sclerosis, lost my golf schalorship along with my dreams

Emily Art, Individual

Dr. Bruce Bloom, Partnership for Cures
The treatment options for patients with most catastrophic diseases have not significantly improved in the last decades even though the US government and industry have invested over 0B dollars in medical research to discover new drugs and devices. The incentives that support “New Discovery Research” are profits, academic promotion, and intellectual property protection. Patient impact only occurs as a distant consequence of these business incentives, not as the primary focus. Patients often go without effective new treatments, especially in patient populations where profit potential is poor.

One Solution: Treatment opportunities ALREADY EXIST in the scientific literature and in clinical practice that can quickly, safely and economically impact patients, if we can create incentives for researchers to look for and test them. This “Rediscovery Research™” impacts patients by reusing, reconfiguring and applying already existing drugs, devices, treatment protocols and clinical observations. Philanthropy can support this Rediscovery Research™, because philanthropy focuses on patient impact instead of profit, academic promotion or intellectual property protection. Rediscovery Research™ can create near term healthcare improvements while the rest of the profit supported system works on long term development of new treatments and cures.

Anne Rutkowski, Cure CMD
The congenital muscular dystrophies (CMD) are a group of rare diseases that cause muscle weakness at birth with muscles breaking down faster than they can repair or grow. A child with CMD may have various neurological or physical impairments. Some children never gain the ability to walk, while others lose the ability as they grow older.
We believe it will take a community to change the way treatments are idenitified and pursued.

William S. Hammonds, Disabled
Nearly fifteen years of MS and the drugs, especially Avonex, I am tired of being dragged along on the money making ride. TIRED!

Gali Hagel,

(name withheld),

Motti Bentov-Hamam,

Pat Sanchez,
Hopefully, the new 2000 page health care bill makes a difference in finding health cures and administering money properly and not just rewarding evil doctors, drug companies, politicians and all the rest of the people who forgot things like "first do no harm","the greater good", "karma baby" - and one mansion, one million is enough.

(name withheld),

Cynthia Romano,

Tamsin Hanna, self employed
I eagerly await cures for those who are afflicted with debilitating diseases, but I truly wish for the repair. I myself have MS.

(name withheld),
Keep working on it!

Kristy Wooldridge, none
I was diagnosed with MS on 11/14/08. My mom, originally diagnosed with MS in 1975, died of MS 1/23/08. Before I was diagnosed, I did not know that I was at risk of MS, at all. I can not work anymore and am waiting for a Disability Hearing, coming sometime in May. I am in full support of this manifesto and will sign it, proudly and with much hope for a "cure" to be discovered.

(name withheld),

(name withheld),

(name withheld),

Kathie Murphy,
Where is the research into leukodystrophy. My 16 year old daughter has leukodystrophy - I hope a cure comes soon for her.

(name withheld), none

Jason Adams,

Scott C. Mitchell, American Tinnitus Association
According to several surveys, 10 million Americans suffer from chronic "ringing in the ears", a condition known as tinnitus, to the extent that it is a major factor in the quality of their lives. Military personnel in combat are especially susceptible to it, making tinnitus disability payments the highest of all conditions paid by the Veterans Administration -- 1.1 billion in 2009, projected to .3 billion per year by 2014. Basic research by the government (NIH, VA, and DoD) for treatment and cures used to run about million per year, now it is up to million per year. Much of the research often covers old ground (like testing compounds that have been tested many times before), or focuses on the psychological aspects of the condition. (Not surprisingly, many people with tinnitus are depressed or anxious or both, at the sound of a whining jet engine in their ears 24/7. This should not be a researchable issue). This kind of cost/opportunity comparison -- *million* investment vs. .3 *billion* -- does not make sense from an economic perspective, never mind the suffering. All this, despite the dedication, competence, and good intentions of the small cadre of tinnitus researchers working in the area. The problem of biomedical research is structural.

Glenda Griffith,
I have MS, secondary progressive stage, and lost the ability to walk about 2 years ago. I appreciate the research done for relapsing-remitting MS, but what about those like me that has progressed? Nothing is being done to help us, to slow own the progression. Are we not worthy of research?

Kathy Williams,

(name withheld),

margaret hardy,

(name withheld),
As long as the medical community is a corporate stooge for drug company bottom-liners I don't see how we can move forward. We will be cash-cows until something changes. Not crazy about having ms but I still enjoy being alive and hope to walk again.
.

(name withheld),
I have had MS for 35 years. Am holding my own through the fact that I ''Pace Myself'' every day!

Grace Duncan,

sue schwartz,

erica vorhauer, Arthritis Advocate
I am a third generation Rheumatoid Arthritis Patient and Advocate. I fight for the 46 million people in the USA living with arthritis. This includes over 300,000 children. I am working on getting the Arthritis Prevention Control & Cure Act passed for more research dollars.

Christopher Waldapfel, Pharm.D., Pediatric Brain Injury Foundation

Kelly, myself
I've had fibromyalgia for over 10 years and I have yet to find the medicine that makes this horrible pain go away. Nothing stops for me. I am in pain day in and day out. CFS gets me on the other side. Pain and fatigue pain and fatigue this is what my life has become. Bedridden shut in and all I want is for the pharma companies and researchers to get together and make a real change in people's lives. I just want a day without pain or fatigue but i'd gladly take years of that if only they will work to make this reality.

Vicki Freitas-Costa,
To many grants on long-time minimal-result investigations, of little significance or impact on REAL LIFE disease correction. KEEP IT REAL

Mike Gresser, Myelin Repair Foundation

(name withheld),
I have had MS for 36 years, and have not walked in over 21 years. I was able to teach school for 21 years before I had to retire because of MS. None of the MS drugs have done anything for me. I am now 68 yrs. old, and my wish is just to walk before I die.

Gary Henson, Elite Products

Karen Barry,

José Nunes de Carvalho,

Paula Louzau,

anne barre,
I've been diagnosed twenty years, have been on the advisory board of MS NSW Australia and am tired of talk, emphasis on begging for money and newly diagnosed treatments and sick of watching services for PWMS being constantly reduced. Money is coming from the drug companies but its not being used on services to the larger population of long diagnosed PWMS.
Thanks you

(name withheld),

Marilynne Tannone, MSSociety,MyelinRepr.
It's even worse when you have a disease that only a small number of people have! I have PPMS which is only about 10% of the MS population,so all the drugs and most the research is done for RRMS patients. Gets frustrating that we don't matter as too small a group!!!

marty yarnall,
This is in support of my friend, Charles Eubanks. MRF, please help find a cure quickly.

Helen Wilson, Indigenous Substance Misuse Health Promotions Unit
I have had MS for 14 years where r the cures

(name withheld),

Wendy Keogh,

Janet Robertson,

Gary Olive, Ptime
We lost a son to Ducheene Nuscular Dystrophy at 25 years of age. When he was first diagnosed we were told that a "cure" would be found before he reached 10 then 15 then 20 and on and on it went until it was too late. Now we are in the same boat with my spouse having MS. Appart from all the expensive drugs she takes to lesson her exaserpations ther is NO CURE for MS on the immediate horison. Where is all the research money going?

james plummer,

Noe Morin,

Cindy Robinson,
I'm almost 50 and was recently diagnosed with MS. I don't want to live the remainder of my life battling symptoms by popping pills.... I want a cure, not only for me but others battling debilitating diseases as well.

The cold hard truth is that the drug companies do not want us to be cured.... all those high-priced CEOs and stockholders would be bankrupt. (Much like I'm going to be trying to pay for prescriptions every month to the nazi prescription drug company.) You know there's a special place in hell waiting for those who let people suffer all for their greed!!!!

(name withheld),

John Kowalski,

Stefania Sendlak,

Jan Z.Koziol,

Renata Matejasevici,

Agnieszka Olszewska,

Barbara Lis,

Dionizy Maciejweski,

Janina Marcinowski,

Pat Pullen-Jones,

Jennifer Kreitzer, ThePeaceSite

Trevor Witt,

Janet Turner,

(name withheld),
I know they have to be careful of unexpected side affects..I don't want to use a chainsaw to cut butter.. but I want the option to try anything that might help if the alternative is a life not worth living! Give me ALL the facts available and let me decide.

L. N.,
Why are major polluters on the boards of all the Medical Health Care Insurance Cos? Is it because they have an interest in controlling disease causing discovery protocols practiced by medicine? Is it because Insurance Companies are aligned with the interests of big business, as opposed to that of human beings? The answer is yes to all of this.

Ben Standard,
I have been donating to research that is intended to discover cures for cancer, multiple sclerosis, birth defects, and Alzheimer's.
I now have Parkinsons and see little result from donations I have made over the years. What is going on?

Shari Lubbe,
We need a cure for Hidradenitis Suppurativa (aka HS). My mother had it for 20+ years, I inherited it from her and have been dealing with this dibilitating & very painful disease for the past 10yrs and I'm sure for the rest of my life if no cure is found before I die. I'll be 47 in May. I fear that my 20yr old daughter will inherite it from and so on and so on. I haven't worked for the past 9 months and won't be able too from here on out seeing as how more days than not I can't even sit down or even walk because of my HS. Now I read that Social Security Disability is going to remove it from their list of covered disabilities? How will I pay my bills? How will I eat? Where will I live if I can't get SS disability? So yes, we need a cure and we need it fast because this disease is affecting way more people than just me.

(name withheld),

macarthur,

tracy oneil, Hidradenitis Suppurativa
we need a cure for Hidradenitis Suppurativa. we need research, treatments, something....

Lucy Biltz, Hidradenitis Suppurativa
Hidradenitis Suppurativa
Where is our Cure? Where are all the cures?

Ryan Witt, Innovation and Choice
Agreed! We need to revisit how drugs are approved. Very few diseases are caused by a single genetic defect, rather multigenetic dysfunctions are at the root of most of the diseases uncured! Drugs are constantly being denied approval because they do not meet primary endpoints of survival or disease regression, however they may have a substantive molecular effect!

We need to create incentives and shift the approval protocols to incorporate this fact - see "Combination Therapies" on FDA website, http://www.fda.gov/CombinationProducts/default.htm). This is the future of drug development; let's get moving.

(name withheld),

(name withheld),
i agree entirely

Anna Fiorentino,

Cynde Route,

David Deitch,
After years of spending millions on research, there is still no cure for ALS aka Lou Gehrig's disease. There is only one FDA approved drug,that they say "may" extend your life by three months.

Mark Le Sueur,
You have my full support.

(name withheld), Private Citizen
There are 1000's of us who suffer from Hidradenitis Suppuritiva (HS). There is no cure and no research being done. Read up on it and help us!

Kristi Baggs, none
I have Hidradenitis Suppurativa and live in fear of my disease progression, what if my children get it and what the future holds. Please help me and all my fellow sufferers, which I have discovered is MANY!!

Teah Mayben,
I was diagnosed with Hidradenitis Suppurativa since I was 15...guess what I'll be 47 in July!! I'm still waiting on my cure!!!!! Now the people in government want to take it off the list for disability! Why you haven't found a cure for it yet!! How the heck do you think you are helping me? I WANT A CURE AND I WANT IT YESTERDAY!!!!

frank m sidari, none
we need a cure for hidradenitus suprativa

Katherine Maphis, Hidradenitis Suppurativa
There are so many of us suffering from Hidradenitis Suppurativa, yet no active treatment or cure. We need help, we cry out and no one is there.

(name withheld),
I have MS,and am still waiting for a cure.

NANCY ELIZABETH CARTER, na

Arshad Islam,

Monica Curran, Mom of Twin Girls
Well, I was diagnosed with Epilepsy at age 9. I had seizures from ages 9-11. Then, in April 2006, when my twins were 5 months old, I was diagnosed with M.S. I began losing my sign and feeling dizzy. Since 2006, I have been injecting myself with Copaxone,which I hate with a passion. Although, I can, walk, talk and feed myself.

Since the summer 2008, I began having seizures again. It is more like I pass out, I do not have the seizures I used to have as a child. These seizures could be from a hormonal change in me and/or the symptom of M.S.

I HATE these diseases and WANT A CURE...I want to be around for my twin girls, to see them graduate, get married and have their own babies.

I know there is a cure for M.S. and Epilepsy, just like there is for all Cancer's. The only thing is, these cure's are being supressed to keep Big Pharma in business, period.

Please, allow me and others like me to live, we want to live and love life.

Bob Wacker, dying with ALS
People suffering and/or dying VS job security??
It's time to wake up America!! Status quo hasn't helped us.

John Pencak,
My daughter was recently dx with MS in July of 2009. She was only 16 at the time. Since she has had 5 relapses and is unable to ambulate without much difficulty. We are currently in Costa Rica and she will begin Stem Cell Transplan tomorrow 031510. There are many discoveries on the forefront and I am confident soon there will be a cure.

Leslie Didur,

(name withheld),

Julie Johnson,
Too much money spent for too little return! The profit margin needs to be removed from research and a truly transparent system established for the benefit of all.

Peggie T.. Quirk, rsds.org
Where is the cure for RSD(reflex sympathetic dystophy) which has been around since the Civil War,,,,,yes the Civil War!!!

Holly Caudle,
It's time to end ms and many other debilitating diseases!

Emil Kakkis, Kakkis EveryLife Foundation
We all need to come together and begin tackling the variety of issues that affect the rate of new drug approvals for rare diseases. It won't be solved by any one thing, but the synergy of many voices with many solutions can change the path forward for development of new therapies.

Jan Schaefer,
PLEASE help us and let us be normal and live again.
PLEASE
We are waiting and fighting soooooooo hard.

Thank you for all you are doing for us.

Mary Hilliard,

Debra Kruger,
As a ms patient, I would like to see the day when cures and/or meds that help slow down disease progression for patients are actually made with the patient in mind rather than just making big pharmaceutial companies rich.

Jennifer Thie, Robin Materials

Paul Greene,

Christopher Emerson, Self
I choose to support organizations that keep their eye on achieving results. Far too many medical research organizations have become less focused on their original purpose and have let themselves morph into groups that are simply too keen on self-perpetuation. We can no longer afford this wasteful self-preservation for it's own sake.
I chose to support only those organizations that with a strong core purpose, that collaborate in new and creative ways with like-minded organizations and individuals. They must continually focus their energies and the energies of all their partners on the core purpose. Creating reform in medical research models, leading to results, relief and the ultimate goal -a cure.

Diane Larratt,

LuAnn Read,
I have known about my MS for a few years now. The medication isn't getting any better! I always thought that diseases had cures, but was I ever wrong! The med I am on is expensive (copaxone) and I am not getting any better! I do hope they find a cure for this. Its really important!

Nuala Doherty,

(name withheld), none
I too have ms.my daugthers have it too.now my grandchildrens are showing symtomes.

Sean McNeil, Dalhousie MS Clinic
I am an RRMS patient from Nova Scotia, Canada currently on Copaxone, a drug that has been on the market for far too many years without new ones being developed. Why do we have to wait with all the technological advancements of today? Medical advancements should be following suit.

I have invested time and finances over the past 5 years toward a cure for MS through the MS Society of Canada. Many researchers are developing noval ideas but they don't see their way to a potential new drug development that may stop MS progression. It is ridiculous and unnecessary.

Reta Bridges, self
I wrestle with spinal problems left after having a problem that was very close to MS and Gillean Barre (spell?) I hear very little going on with research for a cure. If this was talked up....maybe people would be searching for more of a cure.

(name withheld),

KIM STRONG,
MY SON HAS JUVENILE DIABETES, OUR FRIEND HAS M.S, MY MOM AND MOTHER-IN-LAW DIED OF ALZHEIMERS, AND TODAY A VERY CLOSE RELATIVE LOST HER BATTLE WITH CANCER. I DON'T UNDERSTAND AFTER YEARS AND YEARS OF RESEARCH AND THE BILLIONS OF MONEY THAT HAS BEEN SPEND WHY AREN'T WE SEEING ANY RESULTS-ON ANYTHING. I HONESTLY BELIEVE THE CURES ARE OUT THERE, ITS JUST TOO MUCH OF A MONEY MAKING BUSINESS TO RELEASE THESE CURES. PLEASE STOP THE NONSENSE NOW AND GET THESE PEOPLE HEALTHY AGAIN.

Steemiairorge, Steemiairorge

Clarissa, Sutter Health
I am signing these petition for those who suffer for years until are able to get a diagnosis. Nights with no sleep, families and relationships hurt, the paranoia of not knowing what is going on with you and be scared. It is not right in the 21st century for individuals to live years of pain.
Patients are not a disease, they are people!

Kim Cavanagh, MS Patient
Why is it that the greatest, wealthiest nation takes the longest to get research going & get approved for treatments for patients? Why is it other countries are putting us to shame in the research department? I would think the US GOVT & FDA would want to be the cutting edge leaders of MS treatment????? Instead they sit back and let the drug companies lobby and break our economic status down by charging these ridicolous prices on these ridicolous drugs that don't even work. I'm tired of this crap. Let us.....as in U.S. start leading instead of just ignoring our countries illnesses!

(name withheld),
I believe that these companies do not want to find a cure, for MS, after all look at the outrageous prices, for the treatment, they would go broke in a heartbeat, we cannot have that can we

Tamara Michel,
-too much money wasted while people go untreated
-too much focus on keeping us needing medicine instead of curing us
-too much money spent on lobbying and politics ... just find the answers

JANET DEASON,
we need help now, not after we are dead. the ccsvi sounds great for the new generation of ms'ers but not some of us older ones. research should not still be living in the old generation. take the examples of other countries and don't keep killing us because of your ignorance, greed, disagreements, and afraid. that is not a scientist who is after the good of curing a disease!!! WE ARE DYING NOW......learn to play nice with each other and stop hiding research from each other.!!!!!! swallow your damn pride ask other nations what they are doing and how and FDA get off your ass and help us. you are a big hinderance also. any drug there are side effects and deaths as we already know. are you really proctecing us from the drug or saving your ass from lawsuits? we as the people have a right to decide what is right for us or not. we know the chances of every drug we take. but u are blocking our rights by denying all the new medications coming out. you have denied alot this yr alone for MS what esle are u denying that will help us the people to live a better fuller life or does that even matter. are we just resolved to be a number now not a name or a face attached to the disease. come out here and look around and hear us the people!!!!!

(name withheld),

Tami Alveshere,

Connie, MS patient/PLMmember

(name withheld), ring14.net

Krista Peters,
I was dx with MS Dec. 16, 2008

Sylvia Brownlee,
Speaking as a person with MS, the research is of an utmost concern to me. I worry because the focus seems to be on pharmaceutical companies and their profits vs actual breakthroughs in a cure.

sharon yingling, plm
i think big business is keeping us from low priced med's so we have to buy high priced med's that don't really work and have so many side effects that causes us to need more of their drugs.

Phil Hughes,

David Knowles, Americans for Safe Access
So many resources being directed toward MS and other chronic diseases but what seems to happen is that when a bit of positive research develops the big Pharma steps in to try to profit. If the drug fails then the research dies with it.

(name withheld), Multiple Sclerosis Society
I believe if the drug companies were seriously concerned about the welfare of the patient who needs the drug, more accurate, cost-effective methods of relaying information about the drugs and their availability would be made known.

Jacqueline Anderson,

Tim Horgan, PatientsLikeMe

Jan Christensen,
Something needs to change. We aren't seeing an adequate return on the billions spent on research and development.

It's time to take a stand and be heard.

Trish Leavitt,

Anna Amaon, KIA Insurance

(name withheld),
As primary care giver and Health worker for 15 years we can do better for our loved ones---take the profit from Ins. companies and put into research for cures to put them out of Business

Erin Beckman,
I have been pondering this question for the 3 years my husband has fought ALS. We have a 2 year old and a baby on the way....they need their Daddy and we want a little hope.

jenna,
What is there to say!!!. I have to look for HELP outside of Canada because here no one really wants to do anything for people like me (MS). Lots of money is spend on politics, administration, pamphlets, T-shirts, walks and talks but not much on real help: diagnostic tests,treatments,Physiotherapy , or drugs that don't harm us.
Does anybody CARE??????

Kris Brockmann, Myelin Repair Foundation
I have MS and Epilepsy. I have 2 kids, 8 & 10. They NEED a cure so they can have a mom that can play with them. Thanks

Cara Sutton,
I have Multiple Sclerosis. There are now approx. 1.5 million in the US that have it. The government shows that 400 million have it. That is a number from 30 years ago and continues to not increase, though MS is on a rapid increase. I believe the government needs to strongly encourage the people necessary to develop more cures.

Only 21 treatments were developed in 2008. This is the same number as 50 years ago. The number should be so much more due to the technology available now in research. Improvement is demanded in corporations around the world, why isn't it demanded by the government ???

Kate kobylarz,
Researching medical conditions such as ALS, MS, Lupus is time consuming for the patients and families. Medical practitioners could be helpful by assisting in providing informational web links to the most advanced research. Self advocating is the most powerful aspect of taking responsibility for health care. Going to the doctors' offices prepared with questions, exploring options jointly, and insisting on answers are only the beginning. Strict reliance on drugs and the companies that produce them sabotages free will and the perseverance necessary to deal with the daily rigors of any illness. Good luck to all of you. - a two time cancer survivor (without chemo or radiation).

(name withheld),

dolores schwarz,
i have MS. i will not donate to any organizations anymore. we see no cures, nothing happening, and no news. just where are those monies going?

never again will i give any money for any cause. they line their pockets in the names of our diseases.

(name withheld), N/A
My mum has ALS/MND. Where is the effective drug or treatment for this disgusting and terrifying disease?

Jon Norman,
i have MS. i hope that this will help

Tiffany Rae,
i have MS..i would love to be able to wake up every day and be full of energy like i use to.. but it seams lately it has been harder and harder to even get out of bed, and walking is a hole nother story..not being able to feel my feet or my hands is very annoying! finding a cure for MS would be amazing!!

(name withheld),
My nephew has ALS. Let's make some progress in medical cures.

(name withheld),

Todd Lomerson,
My brother has type 1 juvenile diabetes, he was diagnosed at 11 years old, where is the cure?

(name withheld),

John Seitz,
Surprising,revealing and frustrating. Please keep up the good work.

(name withheld), CFF
My son has CF..I want a cure now for my son and everyone who has this awful disease.

(name withheld),

Juliane Spitler,

Carmelo DIbenedetto, CFF
I have started a Group Keep the Afflicted Healthy on facebook for the reasonfor the cure for this reason
The idea is to eliminate duplication of research and have competitive Firms Networking with one another. This information would be channel into a team of the top experts in the field of CF. With elimination of duplication cost will be reduce. This cost saving could be applied to additional research or too supplement the cost to the afflicted and their Families. Once a cure is attained all participating competitors will share compensation derived form the cure.

Felicidade Almeida,
Stop wasting our valuable donation monies. We need to stop funding the pockets of the drug companies et al. How about CCSVI and Liberation Treatment for MS? Start acting and stop the negativity... if further studies are required..then do it! We don't have the time to wait...

Paula Carvalho,

Jen,
My daughter is now suffering a rare neurological disorder called Congenital Insensitivity to Pain/Congenital Dysautonomia/Hereditary Sensory Autonomic Neuropathy. We were told that as far as anyone could tell it was recessive and I wouldn't pass it on to her in any other form than as her being a carrier. Now they say they are wrong and it is dominant.

Alice Phillips, LFA
I have Systemic Lupus Erythematosus. Where is the cure for this disease?

Cindy Langemack,
My sister age 50 passed away 5 years ago of a lung cancer even though she never smoked a day in her life. Now I have lost my husband one year ago to a fast spreading cancer of the ampulary. His life was cut too short - We were robbed of enjoying a retirement together. A friend of mine called me last week to say there is no new chemo left for her husband to try . . . next step HOSPICE. We must find a cure for cancer PLEASE!!!!

Courtney Carver, http://www.therideproject.com

(name withheld), none
My sister has ms. I want a cure now. There must be a way to create myelin.

Heidi Clouser,
I have lupus. There have been no new drugs in 50 years. A new one is due to hit the market this year but nothing else in the pipeline.

Lynda Naclerio,

Mary Grace Tatangelo, Lou Gehrig\\'s aka ALS

Marie Ferrell Buto, Multiple Myeloma Research Foundation
In the name of my father....Francis Ferrell...who has been diagnosed with incurable Stage IIIB Multiple Myeloma (final stage). Also, for his older brother, and my Godfather George, who also lost his life to this little known and incurable cancer

Paula,
My nephew found out 3 years ago that he has Type I diabetes. He is now 27 years old, takes 5 insulin shots a day... we need a cure!

kate martin, Sign Me Up! SIgn Co.
My brother has ALS. I see millions collected for 'the cause', but I do not so ANY collective interest in finding a cure. There needs to be an international symposium on finding a cure. That is a need that must be addressed.

(name withheld),

Shellee Reeves, The Lupus Foundation of America Piedmont Chapter
I have had Lupus for 12yrs and there has not been 1 drug approved by the FDA during these years. Actually there hasn't beena new drug for Lupus in over 51 years! That is ridiculous and unexceptable to me.

(name withheld), none
long-term juvenile diabetes/type 1 has horrible complications, leading to dialysis and kidney failure among other traumas...physical and spiritual

(name withheld),
Signing in hope for cures for myself (diagnosed with MS in 2009) and my 10 year old daughter (diagnosed with Type 1 Diabetes in 2007).

Lisa M. Stebbins, Lupus Foundation of America
I was diagnosed with systemic Lupus 8 yrs ago. I had never even heard of it before then. Now, my fraternal twins, both female, are showing signs of the disease & are currently being referred to a Nephrologist.There needs to be more public awareness of this disease, & certainly more focus on funding for research. I pray for this not only for myself, but for my children, or the next generation of Lupus sufferers, as well.

Bonnie Hendrickson, For My Son Andrew
We need CF to stand for Cure Found
For Cystic Fibrosis
Please Help Find a Cure
Thanks Bonnie

Dennis Sweet,

Holly Gilkeson,

(name withheld),

Kerissa Stott,

(name withheld), type 1 diabetes

Erin Baker, MS Activist
Please help find cures for Multiple Sclerosis, along with the many other diseases that are out there. Those of us living with the disease share daily difficulties that affect our lives, workplaces, and our families.

theresa,

patti greco, heil-luthringer found.
cure my ms please 32 flippin years...had enuf

Lora,

Ian Boyle, Humanity
Small pox, polio, the black plague. Just a handful of things that we have cured, and this was long before vastly superior technological resources we have available to us. In the 21st Century, where every few months we push the technological envelope, why is it we still haven't found any cures to the late 20th Century health problems?

Alison Martin,

(name withheld), self
in full agreement

lisa,
please find a cure for cystic fibrosis

Steve White,
30,000 in the US with ALS, and life expectancy averaging about 3 years, often less.

Deb Goessling,
Patient with ALS

Robert Iwanicki, ALS Patient
All patients with terminal dieases need help in this area. Do Not Forget or Ignore our cries for help. Thank you for listening

Bluford Sanders,

Jenny Johansson, Sweden

FAMY PALACCI Muriel,
Hard to keep faith while we are the witness of awful behaviors from the labs who need to think more about the patient than the money but there is a long way to go !!

maryann bennett,
my husband passed away august 20, 2008. There was nothing we could do about it. He had ALS and that was a death sentence. He lived 15 months after he was dxed. Anything that looked even a little promising wopuld not be available in time to help him. We never ever thought or imagined that he or anyone else that we knew would get ALS. It's rare, right? Rare can happen to anyone. It's to late once you're dxed to start working on a cure for yourself or loved one.

Kara Damm,

Paul Barber,
Do this for my Friends with ALS

(name withheld),
I have MS. I'm sick of it. I've had it for 16 yrs. I'm lucky that I'm still able to work. It's time for a cure!!! This disease has robbed me of my young adult life. TIME SERVED!! C'mon cure and release us from the chains!

(name withheld),
Instead of funding a cure for hair loss, fund cures for those fighting to survive!

Lisa Nguyen, Donor
Find the cure for ALS now.

(name withheld),

Natasha Polchlopek,

peter barbour,

Terri Rimmer, Associated Content
I sign for my late boyfriend Ruben who died of liver cancer only two months after being diagnosed at the age of 51 in 2005.

Patrick Falcone,
Please Help Find a cure for Als,MS,and Pancreatic Cancer. My Family has been affected by all three of these diseases!!!!

Jorene Gordon,

Bob s.,
please fine a cure for ALS.
it is to late for me but furture should not have to suffer with this monster

Mark Butler,
I was diagnosed with MS in December of 1999. It has been said that "time is the fire in which we burn"... some of us are burning faster than others. I am very tired of dying so that others can continue to show record profits year after year. It's time for them to profit from their successes rather than their failures. It's time for a fundamental change.

(name withheld),

tina,

Michelle Heap,
For all the families living with disease, let's work together for a cure!

patrik nilsson, sweden

Jennifer Smith,

Susan Ayers,

Denise Manley, patient
I have MS and have been told to take drugs that hurt me more when there is a simple surgery to stop CCSVI. Wether or not CCSVI is the cause of MS or MS causes CCSVI I should be allowed to be treated for CCSVI in and of itself!

(name withheld),

Lauren E. Wilson,
I'm signing for my mom who lost her fight with Ovarian Cancer.

(name withheld),

becky taylor,

(name withheld),

Elizabeth Barba,

Timothy Powers,
For my son and all of the other children spending a large part there lives in hospital beds.

Jim Nguyen, JimNetics
I am a recent cancer survivor. Some of close friends are as well. But some though aren't that lucky.

Vicki,

Marc Matthes, none

Jim Conwell,
I have friends with MS. Let's think more about a cure and less about profits!

keith kalb,

Barbara Hudson, NMSS Newsletter
Haven't we kept the cure waiting long enough?

Ann Marie Fleet, an individual with MS
I am currently trying to become part of the CCVSI study. Unfortunately by the time it becomes an accepted treatment my illness may be so progressed that I am no longer treatable. I need help now. The only thing even remotely available might be the testing to see if I have the blood vessel problems and that is not funded by a trial, or insurance but must be paid by me. I have already had to leave a job because my "understanding" employer was not so understanding. Now on a reduced income where do I find the huge amounts of money to pay for these tests? There has got to be help somewhere. Who is listening? someone is lining their pockets at the expense of realyy sick people. It is disheartening.

Deana Kendall,

Nicola Nunn,

Scotty Coleman,

(name withheld),

(name withheld), Self

(name withheld), ------------
I have multiple sclerosis. This matters to me!!!

(name withheld),
For all those like me suffering under the hopeless diagnosis and future of ALS (Lou Gehrig's Disease).

(name withheld),
We need the cure for Cystic Fibrosis as well as many other diseases out there!

David Denney, RRIA

(name withheld),
I am an MS patient.

Jenna King,
Infertility, PCOS, endometriosis, acute mylogenous leukemia, and Protien S blood deficiency.

(name withheld),

Jeff Burt, Person

Paul Sinclair, self
This is for Charles and all the others.

(name withheld),

(name withheld),
So many people are waiting for this to happen!

Michele Carabajal, A Cure for Duchennes
My son was just diagnosed with Duchennes Muscular Dystrophy and I don't what to lose my baby! Please let's get on the ball and find a cure!!

Julie Wahlman,

Tricia Lambert,

Steven Kelley,

gina bruno, lupus

(name withheld),
Type 1 diabetes - a cure is out there. Dr Faustman needs funding!

Alexandria Monaco,

dona hessling, privat
It is alarming to see the increase of illnesses in our day, but if one researches history that is typical for a prosperous civilisation where the people are misled to go along with the crowd instead of thinking of what is really good for them. Their children, who have been taught to continue along the same line, must suffer.
Due to the convenient diets - Fastfood, microwave, sweets, white flour, etc. - during the past decades our bodies have not been receiving the nutrients necessary for proper developement.
As a result the body's cells and nerves do not receive the proper nurishment to heal or produce healthy cells.
In conversations with many MS sufferers I have been told the best longlasting help came from an extreme radical change in life style and diet, eliminating all sweets and white flour and returning to freshly ground whole grains containing the vital nerve vitamin Bs. The process is slow but effective.
They also consciously changed their daily routines to allow the nurons to recuperate through searching for balance and harmony.
God had been their best comforter.
No "man-made" drug or pill have a lasting effect in healing but just treat the symptoms.

(name withheld),

allison gerhardt,
My 6 year old son was just diagnosed with Duchenne's Muscular Dystrophy. There needs to be a cure, a treatment, an extension of time somehow, someway. No one should EVER have to go through any of these awful ailments. My baby deserves everything good in this lifetime- just as everyone else does.

Charity Pabst, Walmart

Karen Kim,

Travis Anderson,

Rhonda,

alexandra l. parks,
All people regardless of fame and fortune have a right to adequate and progressive health care. The time is NOW!

(name withheld),
I have MS and I know that research is said to have been going on for years and that few strides have been made in the overall area of MS from diagnosing to treatments to understanding the disease and why or how it starts moreless a cure. I know this past year a new drug was released but then taken back off the market then put back on. Seems like when there are drugs that hit they hit the market with more problems than they should. What is concerning is the amount of money but little progress. Yet we as patients don't have all this money coming our way to help with our expenses like the FDA has coming their way to make sure studies are conducted to find new treatment in a timely financial justified manner. Very sad really but that I guess is just another way the government gets over on all us Americans.

Steven Fox,

(name withheld),

Sheila Ayrom,
Where is all the money going? Let's get some treatments and save some lives!

Ray Miller, MS patient
I beleve that development for the cure for any condition has to be a moral, socially involved and not made for profit.

I believe that while governments and pharmacutical companies have great intensions on paper, in the econamy that they exist in does not provide incentive for cures. Cures are expensive and take a lot of capital to develop and you only pay for them once.

(name withheld),

Connie Stanley,
I have 2 daughters, One with JRA and one with Type 1 diabetes. I have become increasingly cynical with cures being found. I know how much I spend on their health costs and why should there be a cure with all the money that is being made off of them. It's about time for a change!!!

kim curry,

Lori Coleman,
I am a Physical Therapist and I see many conditions that need to be better served.

Danielle,

Sheila K. Johnson,

darby Nicole Resha,
I have had lupus for almost 20 years. It's only getting worse, and the options for treatment haven't really changed. Isn't half of my life long enough to suffer from this disease?

Lisa Bray,
Please!

Jessica Knight,

Tracy Shaffer, Diabetes

(name withheld),
My niece has Cystic Fibrosis and I have Fibromyalgia - we needs cures not excuses

Tracy Hendricks,

Lisa Stovash,
I was diagnosed with lupus, sjogrens syndrome, and fibromyalgia between 3-4 years ago. It has been a very long and discouraging road since then. My relationships with family, friends, and co-workers have been extemely strained. People don't understand why the doctors can't just fix the problem or just give you a pill or potion and poof you're cured! While I understand autoimmune diseases are complicated, I am getting rather frustrated myself. I try to be positive and think that there are those who have it far worse than I do, but I on bad days that is almost impossible to do. I just want my old life back!

Harriet Meermann,
Find a cure for duchenne muscular dystrophy. My 3 year old grandson deserves a full life. We hear about promising research - let's move fast with this research and find a cure.

Dan Unverzagt,
I've been in Clinical trials for over 5 years now for a new CF drug that was finally approved. I seen first hand how slow this process works. This drug was like a miracle for me and others, has an impeccable safety record But it took numerous applications and years for the FDA to finally approve it.

Jeri Mascio,

Stephanie Gray, LIFE
HELP!!! Can't pay medical bills EVEN WITH insurance!!! WE NEED CHANGE!!!

Sarah Caine,

(name withheld), none

Chris Miller,
I am a cancer survivor - my heart goes out to everyone who is suffering and for those who can't afford proper health care! Change is needed!

Chris Thebeau,
WE NEED CHANGE! I AM SIGNING THIS IN SUPPORT OF MY GIRLFRIEND REBECCA AND MY STEP MOTHER RHONDA

Jaimie Shaw,

Lisa Bannister, cervical dystonia

Christina L,
Was diagnosed in 2000 with SLE - Systemic Lupus Erythmatosis - We all need cures.. my prayers go out to all :)

Amy Hogan,
We need a cure for type 1 diabetes. Life is difficult for these children and insulin is only life support not a cure. And it is very very far from perfect.

Also, please don't give up on finding a cure for childhood cancer!! These babies are our future!

Ginny Huffman,
Was diagnosed with Lupus along with a high rheumatoid factor in 2003 and Hemochromatosis in 2006. Need help!! No insurance and no way to pay for dr's visits or NEEDED meds!!

Sharon Motley,

(name withheld),

maura veneri, n/a
i hope that more cures are forthcomming so that some if not all of these diseases can be"erradicated" once and for all.

LISA TEFFT,

(name withheld),
I developed blood clots in my leg and almost lost my leg, I have seen several Drs and have not yet found the reason for the blood clots. This is getting costly, even with insurance I am left with outstanding medical Bills and am having a hard time making payments to the providers, who in return will turn me into the collection agency before I can get them paid. It is believed I have a autoimmune disease, but I have not tested positive for any with the expection I had one positive reading for Lupus, which later came back negative. I have all the symptoms of lupus, but without a positive reading I am not being treated for it.

(name withheld),
I have Multiple Sclerosis!! need help!!!

Amanda Johnson, Nurse, Patient Advocate
It would be nice to see my tax dollars spent on something that so many could benefit from.

Beth Hudspeth,

Marina Rendeiro,

Marianne Chacon,
My 5 year old nephew is battling both Cystic Fibrosis AND Celiac Disease. He lost his Mom to cancer 3yrs ago. We need to stop the madness. Pharmaceutical companies need to stop wining and dining doctors and spend the money where it belongs!!! This is coming from a nurse , married to a doctor. I am talking from experience!

Susan K., Cystic FIbrosis Foundation
My 20 year old daughter has Cystic Fibrosis. My sister has diabetes. I lost my mother 34 years ago to ovarian cancer, my father 28 years ago to pancreatic cancer. With all the money that's been given to find cures, where are they? I'm 55 years old and have not heard of any disease being cured, just "treated".

Heather Meermann, Save Our Boy Foundation
My 3-year-old son has Duchenne Muscular Dystrophy and we are determined to give him a future. Please join us in our efforts to turn the science into real CURES.

Tracie Hayes,
husband diagnosed with j.d 19 years ago

(name withheld),

(name withheld), JDRF
I am 28 years old and I have had Type I (juvenile) brittle/labile diabetes since 1993. I was diagnosed at 11 years old and at my diagnosis was promised a cure could happen within 5 years. It's been 16 years and while I have read about wonderful diabetes research outside of the US. In America, we don't see much progress. I lost a close friend and ex of mine to diabetes when they were only 16 years old. I've lost an aunt to cancer. And I also deal with fibromyalgia.

Lauryn Morgan,

Cecelia Kessler, saveourboy.org
My 3 year old grandson was diagnosed with Duchenne Muscular Dystrophy. The article, Where Are the cures? confirm what I believe is standing in the way of curing many diseases. Thank you for your foundation. My grandson's life and many others depend on getting past the valley of death.

Julie Smith,

Margaret Wood,
My son has epilepsy, my husband is diabetic and I have lupus. Where are the cures? This is 2010!

(name withheld),
For everyone living with cancer...

tara raabe,
i have MS my sister has PCOS we need the cures sooner rather than later!

Christa Turnell,
I have had type I diabetes for 36 years. It's time to stop wasting my time.

Jacques Lescoat, Mac Gillen

Dawn Porter,

kellie gehring,

(name withheld),

(name withheld),
I am a thirty-something married woman w/ progressive MS. I am mommy to my four year old son, who is suffering because I have fallen through the cracks of MY Government's system. Last year, I was informed that I have exhausted my Lifetime Benefits of physical therapy - and not surprisingly my health has rapidly declined. This is criminal - there should be NO caps placed on benefits that we pay for. I am also tired of cow-towing to the medical specialists who are so eager to write out a prescription for me only to meet their quota. I NEED HELP and I NEED MY GOVT TO BE MY FIRST RESPONDER. I want to live for my son, who has already spent almost 2 of his 4 years watching his mommy fight this relenting battle. PLEASE HEAR US. PLEASE ACT.

Deidre Bock,
I have systemic lupus and sjogrens syndrome. It is time for a cure!!!!

Lisa Anderson,
My 7 year old son has muscular dystrophy. Most of these boys are in a wheel chair by age 13 and pass away before they are twenty! I refuse to sit and do nothing! Our boys deserve a chance FOR a lifetime!!!

Marie Neil,
I am 34 and was diganosed with lupus sle in 2006.
Where are the cures..?
Yes I would like to see this move forward, for not only for myself, but for everyone who has been affected with a life threatening illness.

Michelle Gelhar, National MS Society
I've been diagnosed with PPMS in Oct. 2009. There are no current FDA approved drugs or treatment for this form of MS.
Until recently, not without pain, I've led a very active life. It's important to me to remain active, yet my condition prevents me from many activities.
Please use funding to continue to find treatments and cures for the debilatating diseases of these times.

Barbarajean Williams,

Diana Hulsey,

Brenda,

(name withheld),
Coming up on 10 years as a type 1 diabetic with seemingly little-to-no treatment advances in that time. And certainly no cure. :(

Susan J. Minnehan,
I have MS. At 56 yrs. of age my MS has decided to become very active. I have been hospitalized twice in the last year and am now experiencing another attack. I agree 100% it takes way to long in the US to get a drug approved. I see no reason what so ever for this to happen. The system is definately BROKE.

Dayra Stickney,

(name withheld),
This is for everyone who suffers from all the diseases for which a cure is desperately needed. I'm 62 & I suffer from SLE, Fibromyalgia & RA.

Jeanne Wilkie,
Living with M.S. for 7 years!

(name withheld),
Diabetes , where is the cure???

(name withheld), Private individual
Motor Neurone Disease is affecting thousands of victims in the UK. Who knows how many thousands have already met an untimely end as a result of this horrible disease.
Seemingly we do not know how it is caused, or how to treat it. Urgent help is needed now. We must have a co-ordinated response.

Chantel,
Living with Lupus.

Ali Atkinson,

Michele Orgel,

scott richter,

Alexandra Albin,
I have multi focal avascular necrosis. You don't see groups for it on patient portal websites. But, it is a real drag when your joints die and collapse and then you have to have joint replacements starting at a really young age -- 40. There is no cure and little ameliorative things one can do. It's not life or death but definitely life altering.

Erika Mikusova,
I am 37 years old woman with MS and CCSVI.
I had my procedure and got a stent in November 2009 in Poland. I feel better!

(name withheld),

Blayne Samuels, n/a

Michelle Coady, Alzheimers
Both of my parents succumbed to Alzheimer's disease. Please help.

(name withheld),

(name withheld),

kelley tringe,
i am 33 years old and living with Lupus and rheumatoid arthritis

Fred Graff,
The world needs to change its train of thought. It HAS GOT TO be about health, NOT wealth. Until this happens we are all doomed to lives of disease and afflictions.

Kevin Wilson,

Jeanie Herzog,

Dianne West,
My husband has Multiple Myeloma. It's time for a cure for Multiple Myeloma and so many other cancers and chronic diseases.

Lisa Fuqua,
I'm a current Secondary Progressive MS patient and I am signing this for all of our futures.

Jonathan W Monkemeyer, Hereditary Disease Circle
Cures exist in the labs for almost everything. The technology often gets acquired and suppressed by those who profit from illness. We must fix the rules for applying research because they exist to protect the monopolies of our health care system rather than to protect the best interest of our dying patients.

Health "cures" are not easily enable in the USA because Health "care" is so profitable. Other nations are applying the research. We must fix our system for the future of our nation. This takes legislative action to re-stack the system in favor of the best interest of patents vs. the special interest.

If health "cures" was the focus of health "care" reform, we would have a much more affordable national health care system that actually makes our nation much much more productive.

Diana Gordon,

mary golish,
The amazing accomplishments of ezploring space is mind boggling, but couldn't we now concentrate all those brilliant minds in to curing those dreadful diseases that rob us and our loved ones of leading a decent dignified life.

Nathan Ross,
This is for my sister and I. We both have Cystic Fibrosis, and she's nearing the end of the fight. Once she goes, I'm sure to follow close behind as I can't go on without her.

Pepe,

Stephanie Swenson,
I was diagnosed with Lupus (SLE) when I was 18, I am 30 now. My grandmother has Lupus, she is 65. The treatments I receive are the same treatments she has been receiving for over 40 years... help.

Michelle Clinton,
My husband is living with ALS, Lou Gehrig's Disease, and it is a horrible disease! NO CURE!

PLEASE FIND A CURE!

Paula,
I am 36 weeks pregnant with a child diagnosed with Dandy Walker Malformation. We need a cure now!

Jennifer Bell,

Peggy,

BONNIE GRILLAKIS,
I HAVE A SON WITH A NEUROLOGICAL DISEASE IN A WHEELCHAIR AND A GRANDSON WHO HAS CEREBRAL PALSEY!!! WE NEED TO STOP WITH THE INFACTUATION WITH MONEY AND START CARING ABOUT OUR HUMAN LIVES!!

**8 LETS FIND CURES NOW FOR US AND FUTURE GENERATIONS TO COME AND WIPE ALL THESE DISEASES OFF THE EARTH!!!!

Erin Reid,
Diagnosed with multiple sclerosis 10 years ago. Need testing and treatment for CCSVI in the U.S. and stem cell therapy!!!!!

Penny Caldwell,
My husband has ALS and there is still no cure. It is a horrible disease and many good, decent people die from it every day.

WHERE IS THE CURE?

(name withheld),
It's time to find a cure for pancreatic cancer.

Judy Gettman, PALS
Als has been here since the 1800 so why with all the millions for research do we not have a cure. Do you know what it's like to hear that we now have a pill to stop gray hair and know money went to such a vain project rather than toward somehting to save lives.Walk in my shoe's you and your family will have an all new reality of life. Imagine how it would feel to lay in your bed or in a wheelchair and only your brain and eye's work or trying to live life knowing that will be your future. Our goverment saves so many people outside the USA but so many are forgotten in our own homeland.

(name withheld),

(name withheld),
ITS TIME TO FIND A CURE FOR ALS

Brooke P.,
I was diagnosed with Lupus 2 years ago and was shocked that with as many advances in the medical industry that there are, very little is still known about this disease that affects so many lives. Often times my meds cause more illness than the disease. There has to be something better than this out there.

Laurie Reyes, daughter of Lymphoma Mom
Please fix this. Our lives depend on it.

Lynn Anderson,
I know many people with diseases that have no cure...particularly multiple sclerosis and mitochondrial disease. We need cures!

(name withheld),
Our 21 year old daughter is dying from a Mitochondrial Disease that was diagnosed 2 years ago. As of now, the disease isn't cureable and only vitamin/enzyme therapy is a hope to slow the progression of the disease. Of course, insurance won't cover this. Day by day we watch her suffer and there is very little research done on this devastating diseae.

Lisa,
I am 36 and have ALS. We need a cure!

(name withheld),
I have muscular dystrophy and for all the money collected each year I've never heard or been given a thing to try to help symptoms or aid others

jenn mcnary,
watching my sons' waste away from duchenne md. need a cure before it's too late

tiffany, self

(name withheld),
Research and medications meed to be made available. I have a sister with MS that deserves a cure

Joan Beal,
As the wife of an MS patient, and the woman who brought Dr. Paolo Zamboni's research on Chronic Cerebrospinal Venous Insufficiency to Stanford University, I have seen firsthand the reticence of the medical community to change, and the adherence to the status quo. We must stand together and ask where our tax dollars and charitable donations are going. Thank you for speaking out, Scott. I join you in asking for answers. Joan

Thomas W. Ohlson,

Mary Russo-Myers,

Brad Parmenter,

James M., none
This is for everyone suffering with multiple sclerosis and interested in being screened for Chronic Cerebro-Spinal Venous Insufficiency (CCSVI). CCSVI can be treated via endovascular angioplasty. The treatment has arrested MS progression for some and reduced MS symptoms for others. This must be fast-tracked to provide testing and treatment for all of those suffering with MS. This would save people money and improve the quality of life for many.

susan, MS patient

Jennifer Chow, none
We need a cure for type 1 diabetes NOW. Children are suffering with this disease that robs them of their childhood. My 7 year old daughter has had this since she was 2 years old and she misses out on so much.

(name withheld),

Denise,
My MIL died from ALS several years ago and now my BIL has it. I'm worried about my husband and kids. It doesn't seem like they've come up with any treatments or cures since Lou Gherig had it over 70 years ago.

Ivan Johnson,
Where is the cure for Parkinson,

Shari Huffman,
I am signing because my mom can not...she died of pancreatic cancer. Where are the cures?

(name withheld),

Sarah J Creek,
This is for all the family members i have who have died from myotonic muscular dystropy in hopes that future generations will have HOPE and a CURE

Tess Larsen,

Michele Dupree,
This is for all of my friends who are battling or who have died from ALS. Lou Gehrig died over 70 years ago and there is still no known cause, treatment or cure. I have friends from age 18-70 who have been diagnosed with this fatal and devastating disease. Where's the cure?

Elizabeth Klousia, Former MDA state ambassador for Iowa
I am grateful for the work MDA has done but I feel that the researchers have been hampered by various issues. My dad and I have a milder form of M.D. and my mom has (M.S.) My dad calls us the M&M family. :~) Laughter has been the most important coping mechinism...but a few cures would keep that smile on our faces. I would also be less concerned about giving my parents the grandchildren they keep bugging me for!

Michelle Sabino,
I have had Spinal Muscular Atrophy (diagnosed as Type 1) for 30 years now! Where's the cure?

(name withheld),
My brother died of MS. There has to be a cure for this.

Peter Stodden,
I have ALS Where's the cure?

Kira Jones,
I'm signing for myself - I battle Crohn's Disease every day. And I'm signing for all the patients I worked with who died of Pancreas Cancer, especially my dear friend, Alan.

tina johns,
this is for my daughter that is living with SMA type II. she, and i, would love for there to be a cure.

(name withheld),
For my daughter suffering from Rett Syndrome - and all of her "silent sisters".

Holly Miller, human
Please help!!!

(name withheld),
I pray for a cure for all cancers and other illnesses. My mother has been battling ovarian cancer for 8.5 yrs. Nobody should have to suffer!

Josette L Mathews Hunter,
I lost my dad to Multiple Myeloma and now Im praying for a cure so other families wont have to suffer the loss of a loved one..

Cindy Pickersgill,
I am signing for my husband who has ALS. It is devastating to get this diagnosis. You are told there is no treatment and no cure. You will die in 2-5 years. Not enough people get ALS each year to make it profitable for any large drug company to waste their time. Look how much money was spent on finding a vaccine for H1N1 - a treatable and rarely fatal disease. ALS is ALWAYS fatal. Doesn't anyone want to save these people!

Marielle Kennedy,

Janelle Bedel,
I am a 33 year old Mesothelioma survivor and there needs to be a cure! I am lucky to be alive compared to the other 90% who never had a chance.

Melissa Carolin,
I'm praying for a cure for pancreatic cancer. It devastated my family and what my husband had to go through is unbearable to think about.

John, lymies.ning.com
Something is wrong in Denmark for sure, the people's voice is not heard anymore and politicians do what ever they want.

So much waste going on, Lyme Disease is the fastest growing Disease in America now and is grossly misreported and under diagnosed because of bogus guidelines put out by the IDSA.

Millions are suffering from chronic pain and unknown illness and Lyme is the last thing they look for and when they do they do standard tests which are false negative 50 per cent of the time.

Shtearon Clifford,
Diagnosed with MS 4 years ago. I lost a cousin to MS 2 years ago and another one to Lupus 10 years ago. There are many theories and speculations in regards to the advancement of treatments for debilitating diseases, to date however there is not a true answer. The government deferring funds, pharmaceutical companies delaying for a profit, the list goes on and on. There must be a way to advocate for individuals and families for treatments, cures and medications with in a affordable realm. If this is what this site and organizations intentions are...I sign up!

Julee Molle,
I am signing for myself (living with MS since 2007) and for everyone else who suffers from disease. NOW is the time to find AFFORDABLE medicines and NOW is the time to find the CURES!

Shirley Lewis,
I pray they find a cure even though it is too late for my husband!

Robert Tramper,

Carolyn Mills,

Mary Day,
I am signing for my brother John Perry Day who died of Cystic Fibrosis at age 11, and struggled with this debilitating illness for all 11 years.

Lisa Becker-DeArth,
I have Lupus, RA, Fibro, ALS and so many other things that need a cure found.....too many too young to have these diseases.

Laurel A Haught, Family
So many lives are taken so abruptly and so young with pancreatic cancer. My brother was diagnosed in Oct 2008 and lost his hard battle June 14,2009 at the age of 47. This diagnosis should not continue to be a death sentence and I support any funding and research efforts out there

Christina Sorenson,
Diabetes needs to cease... Signing in honor of my eight year old daughter who is living with and battling type 1 diabetes and in honor and memory of my mother who passed due to complications of type 1 diabetes. Where are the cures for this and many, many more diseases??? I stand completely frustrated.

Deana Patterson,
I so want to have a cure for Lupus and the nasty little ailments that come along with it. If not a cure maybe some understanding from a Social Security Judge that knowing there is "no" age limit to when they have to retire when they are a certain age, that some people are not just "faking" the disease to get attention and BE lazy. I always have worked and I have no energy from the monster that makes my skin hurt and my bones hurt to the deepest point within them. In places that I never even knew that really existed in my body. I need and the other millions of people that have Lupus need, some empathy and a little understanding. I know that i did not ask to have Lupus and i am so very sure that no one else has asked that either. Where is the research and the reading materials that the Dr.s and Nurse Practioners need to be reading on Lupus and trying to understand that when a person that has Lupus needs something to ease the pain. And NOT be told that the patient "JUST HAS A MENTAL PROBLEM" and that they are too this or too that and need to get up each and everyday and work, WOW if they only knew how nice that would be. Someone please find a cure for this nasty energy stealing pain giving disease. And in the process, please educate the people in the Medical field to know what they have come across when we explain the skin hurting and the red butterfly on our face. Just be a little more generous with the research, then and only then may you find a cure.

Laura Rasetti, Pro RETT Ricerca
We are an Italian non-profit disease research association on Rett Syndrome

Alexandra Cooper,

Yvonne Jones,
My 22 month old son was recently diagnosed with Alexander Disease, which there is currently NO cure for.

Angie McCubbins, SMA
I am signing for all the babies diagnosed with SMA or has died from SMA.For my best friends baby who died from SMA type1. Also, for my mom who died from breast cancer. May we find a cure for both really soon!

Cindy Odom,
I found this website today on facebook and posted it to my profile. I am happy i did.

Pat Payne, PAN, PDF

Diane Kowalski,
I am signing for everyone suffering an illness! Especially my husband who has Multiple Myeloma. May you all pulverize the diseases!!!!

David Wood,
We, as a society, have invested in the future of health care in this country . When do our children, the future, receive a return on that investment? When? Why does no one seem to know? Why?

Teresa Wood,
I am signing for my son who fights a daily battle against Duchenne Muscular Dystrophy.

(name withheld),

Janice M.,
I am signing for my mom who battle inoperable pancreatic cancer courageously for nine months; my my aunts who have passed from breast cancer for my niece who battles, and for my best friend who is a two-time survivor.
Where are the cures?!?!

Lisa Marche\' Midgett,
Fms,RA and Lupus...enough said.

Tina Pugh,

Victoria,
Where is the cure for Limb Girdle Muscular Dyastrophy!!!!!!!!!!!

Donna, Muscular Dystrophy Asscociation
please find a cure for my son who has DMD. please let him live!!

(name withheld),

Diana,
Jerry Lewis has been raising million since I was a kid. Now my son who is 18 is one of HIS kid, and still no cure! Where's all the money go????

Sheila Thacker,
Signing for a friend with MS & all those who suffer with any disease ... it's time to find cures!

Dawn Bundy,
I hate that I have to watch my son become completely paralyzed and eventually die from type 1 SMA simple because pharmaceutial companies don't see cures as financially viable.

Audra Butler,
My 20-week old son died from Spinal Muscular Atrophy or SMA in June 2009. SMA has no treatment or cure, and is not a priority for funding - even though the National Institute of Health (NIH) selected SMA as the disease CLOSEST to a TREATMENT and researchers state a CURE could be reached in LESS than 5 years if given the resources. With appropriate funding, a cure will be found and babies lives will be saved. Anything else simply is not acceptable.

(name withheld),
Too many people are losing their battles. Something needs to be done quickly!

(name withheld), Muscular Dystrophy Association
My grandson has DMD. His life expectancy isn't all that long. He will be 6 on March 1. If he makes it to his twenties, he will be lucky. They keep saying they are close to a cure. In my estimation, the FDA is dragging their feet on a lot of things. There are even drugs out there that can help others with other types of diseases that the FDA won't approve. I think the whole system is BROKE! I feel like the big drug companies are afraid if they can start to cure these diseases that cut peoples lives short that they would be out of business. Another thing, they make new drugs so expensive that people can't afford them or insurance companies won't pay for them. My beautiful sister in law died because the insurance would pay for drugs to treat her rare form of leukemia.

Jim Korioth,

linda bender,

Elayne Mackey,
Cure...Please!

rosemary griffo,

(name withheld),

Mark Woods, Multiple Sclerosis

(name withheld),

Dannell DelCid,
I have Lupus and the other things that come along with Lupus.

Pat Leahy,

PEGGY McALLISTER,
As the mother of a son who has become quadriplegic from progressive MS ,we are both very hopeful that myelin repair will be able to restore some ability to move his fingers or even his arms. He would be very glad to be a "guinea pig".

(name withheld), Clinical Center Nis, Serbia

Jennifer Barnidge,
I am 26 Years old, I have Lupus and Sjogren's syndrome.I have been on methotraxate for almost 2 years now, I want to have a child but I cant because of the meds I am on, and if I come off the meds, i am miserable, in pain, cant eat, cant sleep, and so exhausted that I cant move. I want to be able to have a "normal" life without worring about my lupus, and I want to be ablee to be there for my kids. We need to find a cure, not just for lupus but for alot of these disease.Our goverment needs to get their prioties straight.

amy irene white, Author nd Journalist
I am signing this manifesto in honor of lupus sufferers everywhere. we are dying every day, too... there are other diseases out there besides cancer.

yolanda soto,
I have had SLE for 16 years and I am now applying for disability as I can no longer work. My 21 year old niece Christina Collin-Soto died of complications of Lupus 4 years ago. We need to find a cure NOW....why is it taking so long?????

MElissa Rose,
I'm signing for myself and my children. Hopefully one day there will be a cure and our children and their children won't have to suffer.

(name withheld),

Suzie Blakley,

(name withheld),

Kristina Hall, none
I have Lupus, Sjogren's Syndrome, and clinical depression, partly as a result of dealing with these frustrating diseases. Where IS all the money going? Why hasn't there been a new drug approved for Lupus since 1955? Drug company CEO's make millions and millions of dollars.....has even one CEO thought of foregoing some of that income and put the $$ towards research that makes a difference? This is a HUMAN issue. SHOW SOME HUMANITY. Don't get rich on the backs of the chronically ill. I am one person with a disease, but there are millions of others with other illnesses. STOP THE GREED. Use your knowledge, power, and money to help those in need....PLEASE....we are all one people. Make the dollars you get for research count!!!!

Rosa Vidal,

Cheryl Reiman,

Margot Vela, PanCan

Mike Rogers,

(name withheld), n/a
My dad has CIDP and Lupus as a result of all the medication. AANNNDD, one of my best friends has a little boy with SMA type 1. All of this money and for what? Where's it going?

Gina, Aunt of a MD child.
PLease PLease PLEASE He is so young. SO vibrant. He needs the chance.

Jeff Corriher,
I understand the government has a dilemma. I recognize that if cures were released and commercial manufacturing were to begin, it would mean a loss of private funding and also an increase in healthy individuals that would need to be cared for.
Wouldn't it make more sense though if the time and money spent on keeping these things a secret were redirected at helping the commercial pharma sector and also investing in ways to help handle the population increase? I get that the government would like natural selection to take it's course and weed out what it believes to be the people predestined to die early, but what makes it their call? Do they make the same choices regarding their own families?
Unless you have someone in your life that perseveres with an "incurable" disease, then you truly haven't seen the testament to human will. How dare someone else decide that person's fate. My grandson is 9, has Duchenne's MD and is the happiest child I have ever met. What gives ANYONE the right to rob the world of that light? Money? So now we're putting a dollar value on human life?
Does that mean we all have a dollar value? Who decides that value then? Cause if it's me, there's alot of rotten people out there who should be paying up instead of collecting. Not sitting around letting the innocent suffer.

Ruth Ann Miller,

Sreven Ellingson, none
I was diagnosed with Multiple Myeloma 7 years ago and have been in remission for 6 years after a stem cell transplant Now I have had to stop my treatment because of a side affect of the medicine i HAVE BEEN ON FOR 6 YEARS

Glenn Eisenring,
I wrote the president when he asked for suggestions on how to improve the health care system, and I broke down for him how much it cost the just to treat 1 person with diabetes with out complications for a month, if we cured everybody with the diabetes we could pay to insure all the uninsured. That's only one disease! The response I recieved was an e-mail telling me to watch the president's video on health care and that was all I needed to know. I live with diabetes every day, my son lives with duchenne muscular dystrophy every day! I need cures, not video's!

A. E. Burdge,
The system Is broken.
No progress in the Lyme Disease Field?
No News on Lyme Disease?
Take away all our money that they receive and start over again with accountability for funds.
At least show us some reports of what is being done!
If info is not shared it will take 10 times as long for progress. $$$$$$$$$$$$$$$$$$$$$$$$$$$
That's right Greed over cures.
If there is no profit why should they help there fellow Americans?
What a system!
Michael J Fox Got on the Dave Letterman show and said he had Lyme Disease in 1998 is there a connection between Lyme Disease and Parkinson's Disease????????????
Dave Letterman Got bit by a tick in the summer of 2009 and was diagnosed with Anaplasmosis is that Lyme Disease?????
( OH YEA LYME IS A 4 LETTER WORD)
Lou Gehrig had a farm outside old Lyme Conn.
Is Lyme Disease and Lou Gehrig's Disease the Same?
Fibromyalgia
The word first hit the dictionary in 1981.
Is it Lyme Disease?????
where's the research to these questions
if you have done it show us the paperwork on your research!
Saving it for a patent to make millions?
IT'S A BIG COVER UP AND WE WANT ANSWERS!!!!!

(name withheld),

Dee Spivey,
Please hurry people suffer everyday and we need your help!

JoEllen Jackson, care-giver
There are cures...RELEASE THEM!!

Lisa Moose,

(name withheld),

(name withheld),

Melissa,
My little brother was diagnosed with Type 1 Juvenile Diabetes when he was 13 years old. Every day, in the entire 12 years my brother has had this awful disease, I pray that the cure will be found and made available to everyone. I don't like seeing my brother poke himself to test his blood sugar level or give himself insulin shots. I'm so proud of my brother. There's no money to be gained from with holding the cure.

Valerie Park,
Also the ability for the average citizen to be able to afford the cost of medicines and medical procedures that go along with a cure.

Courtnay Stout Brown,
I am a Lupus (SLE) patient so this issue is very personal for me but this is something that should be important to everyone.

(name withheld),

(name withheld),
There has to be cures out there. But where would be the profit in that???

Jason Franklin,
Signing for myself as living with crohn's desease isn't really living at all, and for my wife who suffers daily with fibromyalgia.

KayCee McDonald,
My brother was born with cerebral palsy. Sixteen years later, he's the most kind-hearted person I know, and is so full of life. I want to see a cure so that he can go out and live the life he deserves to live.

Amanda Irwin,
I'm 24 years old and have two small children under 6 years old....I'm always in pain and stay sick ALL the time! ITS TIME FOR A CURE!!!!!!!!!!!!!!

L Chatman, Life is Terrific Seminars
Make this happen, lives are at stake. Money is wonderful but lives are more improtant.

Rita Palanjian,

Alison Lee,

(name withheld),

Melanie Jameson,

Anh Sze,

(name withheld),
as a recently diagnosed lupus patient, i want to know WHY it has been 50 YEARS since any new medication has been approved for lupus???!!! WHERE IS THE CURE? WHERE IS THE AWARENESS? IT'S A COMPLETELY DEBILITATING DISEASE THAT FLIPS YOUR LIFE UPSIDE DOWN.

(name withheld),
To hold patents on scientific information that can lead to cures is completely unjust. It's time to stop capitalizing on peoples misfortune and come together to produce solutions.

Martha Orlen,
I am tired of fighting insurance, pharmacists and doctors. FIND A CURE!!!

(name withheld), discovery place inc.

(name withheld),
For my father in law that passed away from pancreatic cancer and for my good friend at only 34 years of age with it. We MUST find a cure!

(name withheld),
I am signing for my daughter recently diagnosed with congenital muscular dystrophy. No treatment, no cure. Why?

Deena Biengardo, NMSS

Kathleen Quattlebaum,
I have several autoimmune diseases as a result of Lupus. We need better options for treatments and medications to curb the symptoms of this disease.

Dante Venafro, Absegami

Laurie Sore,

(name withheld),
The system IS broken.

(name withheld),
I have lost so many friends and family members to cancer. Now my younger brother has Multiple Myeloma. I pray for a cure everyday!

Diane Coates,
In support of my sister who suffers from Lupus, Rheumatoid Arthritis and Ankyloosing Spondilitis. A medication given to some of these patients that supresses the immune system when the disease itself is killing their immune system!?!?!?!! I don't believe for a minute, with todays medicing and technology that they can't find a cure for things like this and other horrible diseases.

Susan M Benoit, N/A
For myself, my daughter and my oldest brother and all those that suffer with Type 1 Diabetes. Weather it strikes when you are a young child or as adult onset...I pray someone will listen to our heartfelt pleas!

M. Stephens,
I am signing for daughter who died from Cystic Fibrosis 22 years, my nephew that is living daily with CF and my mom who died from Ovarian Cancer.

(name withheld),
A 35 year survivor of many MS treatments.

Deb Kester, own

Sandy Wilhelm,
I"m signing this for my daughter who was diagnosed with Lupus at age 14. At 19, she's in remission and feeling healthy. Between her kidney failure, Neutropenia and the terrible side affects from the medication over the years, it's been a very long, tough road for her and our family. A cure must be found. More awareness must known. Please?!?

Lucy Mercado,

Shelby DeLisle, JDRF

Jo Haskell,
Multiple Sclerosis Diagnosed 12/2009

Wendy Little,

jennifer smith,
im signing this for my 4 yr old daughter and my 3 yr old son who both have cystic fibrosis

Danika Larsen,
For my uncle sufering with MS

Cassandra Haun,
Please find a cure for multiple myeloma and fibromyalgia.

(name withheld), Lyme Disease

Heather Howard,
For my 6 year old son and my brother type 1 diabetes and my mother leukemia....LETS FIND A CURE!!!!!!!!

michael kinsella,

Timi Dieffenbach,
For my brother (19 years type 1 diabetic)and myself (26 years type 1 diabetic)

John Catozzi,
Money for causes, not profits.

Brenda Barberena, Curesma.org
I lost my daughter to Spinal Muscular Atrophy. I will not be at peace until a cure is found. We loose to many babies before they even get to enjoy the life they were destined to have. This needs to stop. It's not the rightful order of the world. Parents should NOT be planning the childrens funeral. I will fight until I bring the daughters killer (Spinal Muscular Atrophy) to justice

Alison,
For my 47 y.o. husband who lived only 6 1/2 mos. w/ Pancreatic Cancer - 95% fatality (76% w/in a year) and no advances in 30+ years. Also for my little girls whose likelihood of getting the disease has now increased 2 - 3x. No time to wait any longer - our lives have forever changed due to no cure - I can't lose my girls too.

Dorothy Shuler,
I'm signing for my baby boy Owen Vincent Shuler. I lost my son when he was just 5 months old to Spinal Muscular Atrophy. SMA is the #1 Genetic KILLER of babies under age 2. There is currently NO Treatment, NO Cure but the NIH has chosen SMA as the disease CLOSEST TO A CURE out of 600 neurological disorders. Researchers CAN CURE SMA, IF provided proper funding. www.FightForOwen.com

Karen,
I suffer from Lupus and would like some advancement in treatment and a cure!

Carol Thomas,
I'm signing because I lost my mother and sister, one right after another, to ovarian cancer, my father who died of a type of blood cancer, my step father who suffers from Parkinson's Disease and on behalf of all the people who suffer from various diseases that we need to cure or prevent.

Susan Choo,

Jason Asato, Teradata Corp.
God speed to all who suffer from this disease!

Anita Amy Ashdon, http://health.groups.yahoo.com/group/independentliving/
People are suffering and dieing while time is getting wasted on red tape, grid lock, and politics.

I have SMA and have only two peers dealing with this disability who are still alive. We exist while our bodies are painfully deteriorating inch by inch. Two of my siblings and more friends than I can count have died agonizing deaths.

Please lift the roadblocks to cures and treatments.

Maureen,
I'm signing on behalf of millions of children suffering of SMA, because I refuse to accept the loss of one more kid if in our hands is the power to stop it.

(name withheld), ms

(name withheld),

(name withheld),

(name withheld), R&D

Robert,

Rhonda Patten,
Diagnosed with Lupus in 2000, a laundry list of symptoms and many tried medications. Some worked , most don't. I sign this petition with the hope change is made with the regulatory agencies regarding research.

Margie Jeevar,

Ashleigh,

Misty Fowler,
I am signing for my 6 year old daughter who was diagnosed with Ganglioneuroblastoma Cancer and ROHHAD Syndrome. There is no treatment, cure, or even a foundation to help us!

Jillian Griswold,

Carlos Sarabia, TD
For friends and family who are suffering from diseases.

Christine Pedersen,
For my daughter, who suffers from Type 1 Diabetes.

shannon greene,
I have Lupus(SLE),Fibromyalgia, and RA and it is amazing the discrimination I'm faced with daily by the medical community. I lost my doctor to retirement on Dec.31,2009 and the only doc I can get to even give me a consult is a Psychiatrist,MD,PHD. Come on medical community and government we do pay your salaries and we do matter!

Joe Rarey, Teradata
This is my personal endorsement for what I believe an extreme worthwhile cause.

Deanna Bennett,

Susan Jones, Gwendolyn Strong Foundation
SMA, Diabetes, MS, Cancer, ALS, Where are the cures?

Nancy Cerullo,
For my Dad who dies 82 days after diagnosis of Pancreatic Cancer.

Laura Holloway, Pancreatic Cancer
My mother died 5 weeks after diagnosis...we need early detection and 'the cure' research funding.

Barbara Zahn, Lucy\\'s Hope for a Cure
I'm signing on behalf of my daughter Lucy, who is seven months old and has type 1 Spinal Muscular Atrophy, and does not have time to wait for a cure.

Gina Klopfenstein,
I have SLE LUPUS, Since 1997 My first flare almost killed me. My lungs, heart, kidney, and liver were being destroyed by my own immune system and failing fast. They even called the CDC to check me out. After a year in the Liver Transplant clinic, I was given a miracle, my liver had returned to normal and I no longer needed a transplant.
More public awareness of Lupus is needed, along with a cure.

(name withheld),

(name withheld),

Jeffrey Hoffman,

Norma Chamberlain,
Having lost family and friends to various forms of cancer I would like to see more work being done finding cures.

Andrew,
My 10 year old son died from duchene muscular dystrophy. i certainly would like to see some result or treatment soon.

Kimberley Nichols,
I have lupus and my daughter has congenital central hypoventilation syndrome

Deborah Gostin, self
I remember when I was diagnosed with multiple sclerosis in 1990. My neurologist had told me it was at a good time because it looked as though there might be a cure for MS right around the corner, within maybe 10 years. It's been 20 years and I have not heard a comment like that since 20 years ago!

(name withheld),
I have Multiple Sclerosis.

Kari,
For my 9 year old son who has Muscular Dystrophy and the many other boys affected by the 100% fatal disease.

Yuriko Howell,

(name withheld),

(name withheld),
I would like to see a cure for Type 2 Diabetes!

Albert Maghbouleh,

(name withheld),
And the costs for new meds and treatments need to be controlled, even if it means the Federal government has to subsidize them.

Becky Sek,
I also believe that we should share knowledge with oher countries more than we appear to be doing now. I have seen Fetal Stem Cell proceedures available in other countries, why not the United States????

nancy, none
signing for my husband who has pancreatic cancer

Diane Turrentine,
I have been diagnosed with Lupus, Fibromyalgia and RA

Kathleen, Lupus Foundation of America
There have been no advances in lupus in over 50 years. Ike was the President at the time.

Rose E. Piccolo,

shirley Santanello,
I've had Systemic Lupus for 18 ys. have gone through several clinical trials, ending in sepsis and weeks of hospitalization because clinical trials are what we need to do to get a cure. These pharmaceutical companies have enough funding to at least get medications that work. Benlysta is the first medication in 50 yrs.FDA approved.
lupus is mainly a disease of women & children, I think that's one of the reason it's not out in the forefront, Young womens lives are being ruined, The pain, suffering & lack of treatments, & horrible side effects is not acceptable. Fetal stem cell treatment should be FDA approved. Autologous translants are FDA approved but the criteria is so strick why wait until a patient is so compromised they may not survive the procedure

April Moreau,

Jackie Arao, Teradata

Jeremy,
I would like to see a cure for Type 1 Diabetes!

Emily,
mom of type 1 diabetes and celiac disease.

Beth Tagliavia,
I have Multiple Sclerosis I suffer daily. Where is all the money that is being raised going? We need a cure. It is a terrible debilitating disease. Not only is there no cure but treating it with injections everyday is very expensive.

What the heck!!

Marc D.,
Type one diabetes, find a cure already!

Lynelle Congleton,
In support of a very special friend, Charles Eubank. Please raise awareness and find a cure.

(name withheld),
I have MS and for all others who suffer with it too.

Neal Thompson,

(name withheld), I have MS

Kasey Minnis, Multiple Sclerosis Foundation

Jeanne Kelly,
I have had MS for 18 yrs......why is there no cure for this and cancer and so many other diseases? Is it more profitable to have theses illnesses? How much money has the NMSS or The American Cancer society raised since either started????? Just some questions on my mind......

Leanne Harper, Lupus Foundation of America
I was diagnosed with Lupus 5 years ago, and life as I knew it has changed. There needs to be medication for the deasese that does not cause more side affects, and make us worse then the deasese itself.

(name withheld),
Living with MS, and wanting cures for all of us sufffering with chronic illnesses now.

Jan Hayes,
Signing for my husband and those who battle Parkinson's Disease.

(name withheld),
I have Trigeminal & Occipital Neuralgia as well as Meniere's Disease. These conditions have profound effect on mine & my children's lives. Where is the cure?!

Marie DeWolfe,
SLE, CFS and Fibro... we desperately need new drugs for the treatment of this disease!

(name withheld),

Andrea Nehring, Familys Of SMA
My son was diagnosed at 11mo old with Spinal Muscular Atrophy. He is now 6 and doing fine. I do believe more needs to be done!!

(name withheld),
I suffer with Lupus everyday !!

Julie Baldock, MS Society Canada

Cynthia Finney,
Let's apply the research in Juvenile Diabetes to patient solutions now! For my 21 year old son who's been living with JD for 8 years.

Susan Schryver,
My son has Type 1 diabetes. He is 13 years old and needs insulin to live. Please find a cure for him and everyone with this condition. Millions of people need a cure.

Tammy Kern, Lupus Foundation of America
I have SLE Lupus and RA, along with Fibromyalgia, just to mention a few things that come along with having this horrible disease! Something needs to be done now, stop tucking it under the rugs and help us! It had been over 40 years since any new drugs have been approved... This must stop! For me, and for all other that suffer from it, and there families that have to deal with it on a daily basic..... Never in America would I have thought that the goverment would not allow enough research money to help..Worked all my life to get paid back like this??? We can help all others, but not our own??? C'mon Washington, get it together, before another life is lost, and another family has to go through this!! Please help us!!! In God I Trust!!!

Jacob Robinson,
I have lived with Diabetes now for fourteen years, and everyday seems to be a struggle to be in control. Doctors have given me different insulin, different regiments, and tried anything they can to get my blood sugars down. I tried carb counting, I went to dining with diabetics classes, and as I was told by one doctor, "There are many diabetics that have this because of not taking care of themselves, but with you and many others your blood sugar is just hard to control. I am sick of having a battle everyday just to live. Find a cure and now!

Cynthia Wade, LUPUS
My daughter who is 23, developed Lupus while pregnant. It has so deterred her from being able to be the mother she wants to be, needs to be, and my heart aches for her. Surely there needs to be more done for this! I myself am in the process of being diagnosed with some type of immune disorder and it is a long and exasperating emotional roller coaster. My ANA Panels are off the charts. Here is my signature! HOping for a cure, praying for change, praying for healing and support!

Wendy Heywood, ALS
As a wife and caregiver to an ALS patient, I am more than proud to sign this manifesto and hope for a better system to aid quicker/stronger advances in research and saving lives.

RYAN GAUTHIER, CYSTIC FIBROSIS

J. S., none
STAY STRONG AND KEEP FIGHTING. ANYTHING IS POSSIBLE.

Christina Mascola,
Everyday I pray for my mother who is suffering with Multiple Sclerosis. Let's conquer this aweful disease once and for all!!

(name withheld), none
my mother lived with lupus for years. my sister melanie jacobson smith lives with it now we need to find a cure

christie cable,
free us of our fight, give us our lives back!

Sheila Dathe,
signing for me and the others living with MS

Dana Stuart, APS Foundation of America
Im 35 years old and have a severe case of lupus & aps. As a result I'm in kidney failure and not a candidate for a transplant. I'd like to see a cure for any of it. I couldn't even get in the study at KU even after recommended by my doctor. What's up with the research?

Fern Cubelo,
I am signing in memory of my husband who passed away at the age of 47 from Pancreatic cancer.

Joshua Daniels,
I applaud you!

(name withheld),

(name withheld),

(name withheld),

robin wilcox,

Audrey Lofton,

Melissa Dakla,

(name withheld),

Barbara Ward,
Chronic Fatigue and Fibromyalgia

lisa lamm,

angela turner, duchenne muscular dystrophy

Dawn Schively,

Anne Marie Volowski, Anne\\'s POWER SURGE Blog
As a person who has a chronic illness, hypertension/high blood pressure and know people who have chronic illnesses, I wonder out loud: WHY THE LACK OF RESEARCH!? Heck I WANT AN ANSWER!

Deborah Ramsey,
Have had MS for 13 years dx'ed 10 not dx'ed and I'm 37

Dr. Linda Huntimer,
I am a Breast Cancer Survivor, a Multiple Myeloma Survivor and a Stem Cell Transplant Survivor. I am fighting for that CURE.

Jacinthe Urbain,
je suis atteinte de la sclerose en plaques(multiples sclerosis) depuis 10 ans et meme plus. My age is 42 ,i have a husband and 3 beautifulls childs I wish to make more activities with them. HOPE

Trisha Whitmire,
Cystic Fibrosis, for my sister who lost her battle 8/12/2009!

Paula Tyda,

(name withheld),
I have parkinson's.

Mary Ayres,
The money should be spent on curing the disease, not on maintaining the disease.

Barbara Valles, barbtravtor@verizon.net
Type 1 Diabetic for over 20 yrs now!!! What's the hold up?? I vote, I pay taxes, I am a law abiding citizen, but yet I struggle everyday, minute by minute with this horrible disease. I'm now facing severe kidney failure and I have a 7y/o daughter who goes to school everyday worried about me, when she should be concentrating at school and just being a child. She's seen me at my worst and no child should have to see that. You all are correct in stating that if any off these illnesses/diseases where prevalent and close to home within our goverment individuals they'd have their hands on the cure, but yeap...money talks and that's what runs our society...money not the importance of human life!!!!!! PATHETIC!!!!!!!!!

Cheryl O\'Neil,
I have Parkinson's Disease and underwent DBS surgery Dec '09. I'm doing fine but praying for a cure!

Janice, Muscular Dystrophy
Find a cure for DMD. I have watched Jerry Lewis raise money for 40 years and yet my grandson suffers from the tragic disease. He is only 9 would like to see 99. Need a cure NOW! 20 years will not be soon enough!

Patrice G. Knight,

Mary Margaret Cannon,
With prayers for all those who endure Ovarian Cancer, Breast Cancer, Parkinsons, ALS, and Dementia in its various forms . . .

Margaret Williams,
Have friends and relatives with Lupus and RA. Lupus is more common than I ever realized. I never knew anyone that had Lupus and now I have many friends that do.

Christine Shahade,
I have lupus and RA. There has been no new drug for lupus in 50 years. We are being treated with drugs for other diseases. The side effects are horrible. Enough treatment - we need a cure!

Mary L. Walter,
Cystic Fibrosis, for my daughter

Nancy Kleinfeld,
I am 13+ years post-treatment and surgery for ovarian cancer (IIIB) but still live in fear every day of it coming back.

(name withheld),

Steve Galliazzo,
C-7 Spinal Cord Injury.

Norena Baker,
I have primary progressive MS and would like to see more studies on all forms of MS.

Sandy,
Ovarian cancer has been a silent killer for too long. My mother passed away in Nov 2008 after a 3 year battle. While I understand the importance for the promoting of Breast Cancer- awareness needs to be raised for other cancers that are much deadlier. There are many illnesses that need to have a light shined upon them- such as bipolar- only now are we seeing commercials for bipolar depression, but it doesn't address the chronic illness as a whole. Public awareness needs to be raised on many of these illnesses.

Trevor Stephens,
Type one diabetic

P atricia Armenta,

Allister Jenkins-Bennett,

Laurie McKeown, Children\\'s Memorial Hospital
It's devastating to see anyone suffer and succumb to disease but even worse to see kids suffer and succumb to disease. Let's get it together for all of our sakes!!!

Bobby Wimmer,

Jennifer Wimmer,

Susan Hall, SR & SLH
Cures and preventative medicine come from daily reflexology~ More attention need be given this ancient medicine!

bill wagstaff,

Margaret Willis,
I have CNS Lupus with multiple other complications as a result of this disease. On behalf of myself and all those who struggle with the pain of this debilitating illness, we need a cure!

(name withheld),

Blair Palmer,
I am signing on for ovarian cancer and breast cancer, for those lost and those who still fight, like myself. I beat it and will continue to!

foo, me myself and i
here we are

Angela Bertram,

Helen Solinski,
The first case of MS was documented over 150 years ago, and we still have no idea what causes it or how to stop it! Where is all the research money going?!!!

Denise Zimmerman,

Robin M Shuler,
I have Lupus. I'm sick and tired of flares! I don't want to live like this and I don't want to die! I need a cure!

(name withheld),

Laura Devenport,

Rita Roberson,

RITA A,
I am in remission with Multiple Myeloma...I want to live to take my granddaughter for her 1st martini!!!!!

Thomas Benedetto,
I am suffering from MS.

Teresa Baker,

(name withheld),
I have Lupus....my brother and sister don't believe that I'm sick, and my doctors have NO IDEA how to treat me because I don't present like other Lupus patients!

Scott MacKnight,
Thisis ridiculous. We need to move faster.

LeeAnn Greco,
Diagnosed with MS 25 years ago. What I read and heard then was "MS, the disease who's time has come"

I'm still waiting?

Why no cure?

Jessica Asam, Palm Beach State College
I am signing for my 30 year old friend who was just diagnosed with Parkinson's Disease.

Liliana Guillen,
I am signing for myself and all other Lupus warriors!

Alan Voliva,
Research indicates, so far, that the following diseases are curable (meaning at least one volunteer has been made symptom free), Lupus, Chrohn's , Alzheimers, arthritis, AIDS, Hepatitis C, terminal stomach cancer, terminal colon cancer, terminal uterine cancer, prostate cancer, gastric reflux (GERD).

james mcpherson,
i have type 1 diabetes,lupus,diabetic retinopathy,neuropathy,scleroderma,fibromyalgia and raynaulds disease

(name withheld), KSD
There are too many people suffering from diseases that aren't chic or "in", like Ovarian cancer and MS. Drugs need to be developed for those people instead of allowing them to suffer til death.

Faye Baden, SEEE, Inc.
Research dollars for cures should be the primary
focus, not research on medications to
deal with the effects of the disease!

tara kottman, patient
please help to save my life!!!!

jeann amantite-gum, none
My husband has been the guinea pig for several MS research programs over the years. Some actually showing promise. However after the research is completed we never see the drug on the market... WHY!

Frances Aranda, Lupus R.G. V. Support Group

Pamela F. Rumple,
I feel that MS is the step-child of the dieases..it never get's any air time at primetime T so you could get the attention of most everybody...I also think they have cures , but they are holding back on them, becuase then where would there profit's come from. I take copaxone, thanks to insurance it pick's up most of the cost, but 00.00 a month for a daily shot is outrages, especially if you have no insurance, then you can't afford it and go without it, and then have relapes all the time.. it 's all so crooked and decieving to me. I am going on 10 years of MS and I want a cure soooo bad for quality of life of what life I have left. Venting over.

Luke Ekkizogloy,

Kelli Johnston, LLS
This is for my 4 year old sister who has had to go through the many horrible treatments for blood cancer, Madison Grace Major.

deborah plummer,
In my opinion there is a cure for everything but the government won't tell everyone for some reason or other.

Laura Tinner,
I miss being physically active. I miss being able to hike, scuba dive, jazzercise, etc. I thank God I can still walk. It is time to put all this research into testing for a real cure, instead of hoping your treatment maintains your current condition.

FasterCures, FasterCures/The Center for Accelerating Medical Solutions
Be it lack of medical breakthroughs, limited resources, or restrictive policies that are stalling progress, patients are paying the price of delays in life or death consequences. We need to create a medical research enterprise whose central organizing principle is curing disease.

Sandra Garr,
I have LUPUS and I DON'T LOOK SICK!!! I am tired of being tired and in search of...A CURE!!!Helloooo I know they hear us ...ALL!!

Charles Eubanks, NMSS
Go MRF! Our medical systems (including R&D) are broken!!

Charmaine King,
My mom has Lupus, Arthritis, Fibromyalgia, and Osteoporosis. She had a silent heart attack last year so now she has heart problems. My dad is Diabetic. Mom's in pain everyday.

Stephen Anthony Pissarra SR,

Athena vardaxis,

(name withheld),

Janet Ferrol,

(name withheld),

Jennifer Moson,
I want to see a change, a change in what should have been done a long time ago. I want to see a cure, a cure that will save millions.

(name withheld),
Always wondered why cures were never found. I heard years ago that a lab in Pennsylvania had the closest to a cancer cure and some how the lab and all its research was burned to the ground and destroyed. If cures are found, the pharmaceutical companies would loose $$$$$$. Our health is not important only as long as we buy their sympton chasers.

(name withheld),
I was diagnosed with MS in 1985 and have been waiting for a cure since then. I have had this stupid disease for over half my life, and would like the second half to be free of MS, not only for me, but for all others who have been diagnosed and those who are yet to be...

TERESA DRAUGHON,
I'M A LUPUS PATIENT...WE NEED A CURE!!

Lorie Teshak-Johnson,
Lupus is slowly destroying the joy I have left in my life. The pain is overwhelming and aside from living on pain medication and switching up meds with things that don't work I have no answer. I am sick more than well. I fear for my grown children more than myself. With the money that goes into research there has to be more known that we are getting.

Rosemary O\'Connor, FM & Chronic Pain Support Group of Sussex County,NJ
HELP!!!!!

(name withheld),
Please find a cure for lupus and autoimmune disorders

martin sheville,

Michelle,
Too much political BS involved in hiding the good drugs and promoting the expensive ones. We need a realignment.

Dawn Martinez, None

melanie jacobson,

michele barney,

Lori Bridge, MS CURE

Michael Muckridge,

Laura Sanford,
We really need to find cures...my family is battling leukemia (4 yr old niece), Juvenile Diabetes (22 yr old niece, diagnosed at 6), Parkinson's (mom), psoriasis (me and my brother), and other issues. WHERE ARE THE CURES????

Kathy Gallagher,
I was diagnosed in 1999 and also suffer from fibro, Sjogren's and arthritis.

Susan,
Please find a cure for Lupus....for all autoimmune diseases.

(name withheld),

John Y. Pabst, St. Mary\\'s School
I was diagnosed at the age of 11 in 1989. Not only has MS effected all my adult life, but also much of my childhood. Please support new forms of research and treatment, I want to see a cure in my life-time.

Randall Greenwald,
I want cures now and I vote!

Vanda Law, MS Patient
Let us just take a gander at the ridiculous resistance to CCSVI diagnosis and treatment. It is a crime against humanity in the name of science. It is NOT working. Lets change it!

(name withheld), self
you need to do your own research..... find out what seems to make you feel better. I have secondary progressive MS. I was told 6 years ago i would never walk again. Ha! I'm still walking. in fact, i really feel pretty good.the treatment is illegal where I live,But it works. so i use it.

Cindy,

denise cheesman,
Lupus patient, that whats a life.

Tracy Jones, n/a
I have had MS for 9 years and I was wondering the same question.

Marlene Daniels,

(name withheld),
I have MS

(name withheld),

Donna Hale,
I was diagnosed with MS in 2001. I pray for a cure every day.

(name withheld), Gallop For A Cure

(name withheld), cancer patient

Debbie Platt, MS advocate
I walk, I raise money , I bring about Awareness.
I'm doing my part.... won't you meet me 1/2 way ?!

annette williamson,

Elizabeth Cline, Mid-Atlantic Chapter

Anita Fischer,

(name withheld),

(name withheld),

(name withheld),

Brenda Harley,

Cindy Rose,
I believe we need to look at everything to fight this! Anyone who had to live with this would!!

Scott Smith,

Deborah Shaw,
the more so called treatments offered , the more side effects go with them, no cures just spend more money... This is needing to change, and I am not even counting the animals butchered ,maimed and abused in the so called name of finding the cure...

(name withheld),

Wyatt Hull, Terra Eclipse

Deborah Jensen,
Lupus sucks! Pharma companies need to start spending more money on novel research and less time moving molecules around so they can patent a drug that has already been invented, and claim the "new version" works better. So sick of it!!!

Susan Mcknight,

(name withheld),
I have MS and hate getting a shot every other day and still shaking! Find the root cause and address it directly!

Mary Swim,

Molly Cotter, PatientsLikeMe

lisa gonzales,

Heather Seymour,

Elissa Vaughn,
I am one of the many diagnosed with lupus.

Onsi Lam, member of AARP

Danica Gabb, None

Michael Mooney, Self
I have a young wife that has MS that limits her abiliyt to do all the things she wants to do and share with her family and 2 young children.

Why can'tdrug companies put most of their reserouces into finding a real cure for a single desiese, produce a "real" cure and then move on to produce cure's for other ailements...one cure at a time? It seems like with all the $$ being spent on so mamy ailments that none of them ever get cured. How long have we been trying to find a cure for cancer? MS? It's rediculous!

Diane Davis,

Linda Friedel,
I am 59 years old, was diagnosed with Lupus 10 years ago. I used to be very active, now I sleep most of the time.
I want my life back, please, find a cure???

(name withheld),

Cherie Pearson,
I have lupus and two other auto-immune disorders, I'm tired of being tired. When will there be an true effort made for finding cures or some kind of relief for these diseases?

Melissa,
Lupus, Fibromyalgia, Endometriosis, and now a blood clot on the lung I m on Medicare but feels like no one really cares.

Marcia Lynn Ackerman, patient (self)
At 56 and 25+ years with MS my clock is ticking faster....

(name withheld), Self
love to hear about this

Laurie Boswell,
I have Lupus, Fibromyalgia and blood clotting disorder. I am 32 yrs old and in constant pain and always exhausted. Please help find a cure! I have 2 beautiful children I need to be well for.

Anne Bivins,
I have lupus. I have had it since I was 16 and now I'm 31. I wish that there were some better treatment options and newer ones

(name withheld),
Please help find a cure for Lupus and other Auto-immune diseases!!

Melissa,

Brian Deguzman,

Jo-Ann,

Robin Pusnik,

(name withheld),

Brian Kelly,
My wife has MS.

Julius D. Cline, MS
Please get going-people are dying.

Trasha Schwendener,
37 year old multiple sclerosis patient; diagnosed in 2006

Denise Kelly,
Sadly, we ms'ers have to be our own advocate to receive adequate care. Keep digging and I wish you good health!

Lorianne Fagioli,
I signed for Jessica James... Peace

(name withheld),
Was diagnosed with MS in 1998. Was one of the lucky ones. Started on Avonex immediately though failed this drug. Have been on Betaseron ever since. Hate the flu-like symptoms associated with drug but have not had any new lesion development since being on it. At the time of dx, MS meds had just been approved by FDA. Would love a cure so others don't have to deal with what MS has left behind.

(name withheld),

Nicole Kline, Multiple Sclerosis
Waiting for a cure diagnosed 2005

Chenell Young,

(name withheld),

Kathleen Thompson,
This silent disease is devastating because of all the many symptoms and no end in sight.
Often meds can't control symptoms. I know others feel the same when I say I WANT MY LIFE AS FULL AND COMPLETE AS IT WAS BEFORE MS.

Kimberly Smith,
I have Lupus and I would love to have a decent medicine to treaty the symptons I suffer from!

(name withheld),
I was diagnosed with Relapsing/Remitting MS in June 2008. At the present time I am doing well but I know I can't count on things staying this way.

Michael Seymour,
How much longer will it take - in the meantime our nerves are getting munched away !!!!

(name withheld),
I am sick of having my life decided for me. I am tired of pushing wonderful relationships aside because of this disease. And I am angry that I won't ever get to tell my future child that there is a cure and they will never have to sacrifice as I've had.

Vanessa Seymour,

Lisa Woods, Multiple Sclerosis
I have been diagnosed with MS in Oct. 2009, but was under diagnosis for "possible" MS since 2005. As with many people with MS, I had doctors treat me like I was crazy, and told I was self diagnosing, because I chose to research the disease when I was first told I "probably" had it. I see so many people suffering from this awful disease, as well as the many other awful diseases. We all need the research to find better treatments and ultimately a cure. There are certainly changes happening with medications for treatment, but we need more!

Kimberly Leeper,
I was diagnosed with MS in 2001.

I am to the point financially that I do not know if I can continue my Interferon therapy. My copay, yes copay, for Rebif is 0.00 a month. It is a non-preferred, name brand only drug. Oh, and by the way , there is no preferred Interferon drug on your plan. By the time I get all 5 of my scripts, it is 0.00 a month. Federal help you ask? Only if my husband and I get divorced, seems are combined income is too much.

Melissa,
How long does it take? Those of living with MS are waiting.

Jayne,

Kathryn Luze,
Please help find cures for dieases. I have had Lupus for the last fourteen years, was diagnosed at twelve and half and have seen my quality of life go down over the years. I am in constant pain and always tired from the Lupus.

Shannon Mair,

winston bennett Barclay, retired New Zealand
Sir;
Howlong do we people of the Ms world, have to wait for the cure,over which $Billions have been spent?We are waiting with impatence.Life has got to be better.!!!

Julia,

(name withheld), H3S
Been diabetic for 25 years, and I am frustrated not only in the lack of a cure, but in the obvious shoddiness of treatment equipment, the planned obsolescence so obvious in care products. The incompatibility between manufacturers, the broken gimmicky supplies made weaker than any comparable commercial products. The reminders to change every three days, and the oblivious confusion of health care personnel when you tell them you know why these things break. Being treated like chattel.

lashaun,

Lisa Mallow,
I am signing on behalf of my Mom. She has mixed connective tissue disorder.

Marisa Sympson,
We cannot wait. We must come together on this now.

Irit Epelbaum,

Susan Withrow,
I agree....MS definately, also asthma which is just as ignored.

Jon Hamilton,
I've been newly diagnosed in 2009 and have already been through the series of steroid treatment then to the Avonex self inject to the Novantrone (chemotheropy) my neurologist strongly feels there will be a cure, within the next 5 yrs everyone hang in there. And also I'm only 25...

Lou Kerner,

Nikki Dobberstein,
I have Lupus...and I have yet to find a treatment that works to help me feel "normal".

david medrano, none
i am one of the many "living" with ms. i have seen this destroy lives. we need and have to get a cure for this. our lives are way to important to let this(ms) take it away. if there are known remedies available we as a nation need and should make them available. most of us(ms)are willing to try new products that promise a cure or stability in our lives.

Jim Ritter,

Denise Marion Lines,

Suzanne Dunkley,
There must be more sharing of information amongst researchers. In this digital age, there is no excuse for doing otherwise. Researchers' egos must be checked at the lab door.

Bradley Schrenk,

Stacy Brown, Law Enforcment Police Chief
I am 36 years old and it was found that I have MS just 6 months ago but have been dealing with the ymptoms for over 7 years. The doctors thought and I was told it was all in my head and I was dreaming it all up. Now that I have found out what it is and with all of the funds availible to this research I can not believe that a better way of life for MS patients has been at a stand still this long. I have been in Law Enforcement for 15 years and now I am going to have to give it up with three small children (boys) under 6 at home. I just want to play ball with them and give them the father they deserve. I have taken many trips to the doctors but it seems as if I am being treated for a cold or flu. It is suppose to be one of the best MS facilities but it seems that the doctors are just not up to date. It appears to me with all of the money raised someone could keep everyone accountible for educating these facilities and lets work together for the purpose for a cure. Lets not forget about what we know but lets think outside of the box with ourselves and our families in mind to give us our lives back.

Gail Fragomeni,
I've had Lupus for 32 years and we haven't had new medications for decades!

PAM BOLT,

(name withheld),

(name withheld),

jerilyn Lessley,
I have several friends with Lupus and all the associated stuff, including myself. I have friends with fibromyalga, cancer etc. All of them have to adjust their lives to keep functioning, and many times it is almost impossible. There must be more research groups for all of the chronic diseases. It shouldn't just be left to just the more focused groups.

Debra Schell,
I am an MS patient.

larry,

(name withheld),
Shareholder profits should not dictate who gets better and who doesn't.

Stephanie pestrak,
i am 43 years old and I have been sick for 81/2 years. I was told I had M.S. and I have been though spinal taps and multiple test's and Lupus finally showed up. At least I know what I am dealing with, now I want a cure.
Best, Stephanie Pestrak

Kathy Irizarry,

(name withheld), NMSS
When greed and profit run major facets of our nation and our economy, it bodes ill for medical research and any humanitarian purpose unless that can be turned into mega-bucks for those who've learned to work and exploit our medical system and business, finance, and politics. Why else would a medicine such as Avonex increase in price by three or four times within an eight year period while the working class economy has shrunk?

Jessica Ab,

Louis Salas, Marsal
At age 79,I don't expect PD will find a cure for me but I have hope they will in the future for others.

Kerry Lude,

stacy jones,
I have MS and really I am ready for it to be gone!! I have a friend church that also has it and takes the same med. as I do and now she has that stupid PMD. this stuff really sucks!! I have 2 children (1 who is special needs) a new husband come April 24. I guess I am having a pitty party today

(name withheld),

(name withheld),

(name withheld),

Jan Simmonds, Famebook™

(name withheld),
My daughter has lupus; my husband, my siblings and I all have diabetes. We are very anxious for cures.

(name withheld),

julie hanna,

(name withheld),

(name withheld),

(name withheld),
CCSVI is a proven procedure to reduce MS attacks on patients. Why is the US so slow to adopt this new ideas and approach to MS? This disease is costing patients thousands of dollars every year to live normally. Is it because pharmaceauticals can make huge amounts of money by the control, but little to be gained in the cure?

Jennifer Powell,

Don Wallin,

margaret pilot, patients like me

Christine,
I have been living with MS since 2001. My father had MS as did one of my brothers. I pray for a cure because I have three children and I don't want them to go through this. I give myself injections, but no one really knows the long term affects. The drugs now just slow the progression. Please find a cure!

(name withheld),

Lenice Y Dixon,
I'm tired of the "treatments" - Bring on the CURE! (Lupus)

(name withheld),
I have a good friend suffering with MS. This man has a brilliant mind and gets so frustrated at his body's betrayal. He deserves a cure!

Susan Hopkins,

Lisa Meskil,
I've been living with lupus and I'm sick and tired of being sick and tired. It's all about the $$$$$$ with our wonderful government!!!!!!!!!

Bill Heiser,
I am now disabled and cant work. I am a Parkinsons patient.

(name withheld), Myelin Repair Foundation

Mary Thibodeaux,
I'm a human being.
I'm suffering.
I'm begging.
I'm scared.
Help me!

Melinda Schneider,

Jenna Machala,
I am Sick of being Sick!!!!!!!!!!!!! I need help and I need it now. I don't want to spend the rest of my life in pain and being petrified!!!!!!!!!!!!

Erin Willett,

Lisa, MS patient
More than 25 yrs of my life-but the greatest cost has been to my children and grands-not to mention the twist of fate for my loving husband. Until it hits close to home the beaurocrats can't see what is important. I won't wish this on the devil Himself. MS is familial in my family along with MD carried by the women. NURSING students knew about this 55-60 yrs ago, long before the genome project that added many more chronic incurables to the list this gene effects!

tara veath,
my father has parkinsons disease and i am hoping for a cure in the near future!

Laurie,
We need a cure! I have been living with MS for four years now and have been relatively stable, but what does the future hold for me? I am concerned about the care I may need later on. I have contacted my insurance carrier to get more info on Long Term Care Insurance. I was honest with the representative about having MS. He said he thought he could get me coverage, he would have to do some research and get back to me. Haven't heard from him since. Should I just try again, but this time not mention MS?

Diana McFall,

(name withheld), 21st Century Oncology

Devery Greene Corp,

Donna A. Reuter,

Billlie Shoemaker,

Deanna Shively,

(name withheld),

(name withheld),

Julie Vanek,
In memory of my uncle, Larry J Heeb.

Catherine Wolf,
we need cures for orphan diseases such as ALS

Jeanine,
My mom passed away in December of 2007. She had been living with MS for over 20 years. 2 of her sisters also have MS. This disease has devastated my family. We need to find better treatments and a cure!

Katrina Louise Dudman-Cook,

(name withheld),

Julianne,

lori grady,
why is the U S so far behind with ms - cause, cure?...Poland is testing and treating CCSVI- while we sit and wait..... as this disease continues to attack!!

Anna Delorme,
CCSVI/MS

Eli Morowitz,

ginger macqueen, CCSVI for MS

(name withheld),
Ms is a horrid disease get with the program people

(name withheld),
I"ve got M.S. and I'm sick of having to take things that don't make me better and don't stop things from progressing - where are the bloody cures or treatments as good as?!?!

As it is I've taken:
Avonex
Teriflunomide
BEtaseron
Cyclophosphamide
&
Tysabri

as well as alternatives like LDN Low Dose Naltrexone!

Come on already? Other than MS I am a very healthy person and I want this taken care of - it doesn't even have to be an all out cure but a treatment as good as!!! COme on guys and gals please?!?!?!

Alexandra Carmichael, CureTogether

(name withheld), MNMC

Ella Krupetsky,

(name withheld),

Beth Farrell,
There has got to be a better way to find a cure. Ihave been living with MS for over 20 years and my brother-in-law for several years has too. The cost of my daily shots is ridiculous and the price continues to climb.

Michael Hiett,

Desinie,

Nathan Post,

Julie Way,

Shirley Renshaw,
Excellent video. Unfortunately the people who think they are God and we have to live by their rules do not have or in their family any of the many illnesses or diseases. Prove me wrong. Please.

Carol Menaker, Myelin Repair Foundation

Jamie Heywood, PatientsLikeMe

(name withheld),

Beylah Redke,

Sandra Forbes, none

(name withheld),
I have had MS since 2003. It is slowly getting worse and is not made better by being constantly told by doctors there is nothing they can do. I read of people gettig treatment - how?? Any relief would be good but a cure, MAGIC.
Please God be soon!

Grace Davidson,
I have watched my son who was an extremely intelligent and talented young man decline in all his abilities. I keep him at home as that is where he will get the best care and diet not in a long term care facility where some doctors have insisted he be placed. I too believe that not enough is being done for people with MS. When I heard about the blocked veins I wondered why this was kept secret for so long. Then I heard the MS Society was not willing to support the research for testing veins of MS sufferers. It was not until the society received numerous calls from their clients (MS sufferers) that they had to relent and offer some money for research. It makes one wonder if there is anyone out there really interested in curing people or is money the only motivator. What a shame. How sad that our society has come to this--money more important than people's lives. Let's change this and put pressure on doctors, researchers, drug companies, etc.

Linda Reed,
I've watched my little sister go from an independent lady to being bedridden and unable to care for herself. Even with the many medications she takes, she is in constant pain. She's a strong person and seldom complains, but it is heartbeaking to see what MS can do.

Michele Ashley,
CCSVI surgery, then stem cells...then a cure? when i realized last night that the drug i am on literally costs 100 a day, it blew me away!

Amy Monroe,

Christel Mattsson, None
Who won´t they let us try LDN (low dose naltrexone)? I´ts not a cure but still...

(name withheld), self
I want a cure.

Jeremy Johnson,
Keep up the great work. There certainly is a better way!

(name withheld), multiple sclerosis society

Lynda,
I have RRMS and can see my disease progression. Please do something to help us stop this horrific disabling nightmare.

melvin shore, individual
The need to expedite treatments consistant with safety is obvious. Claiming concern for safety alone seems to be nothing but an excuse for bureaucratic foot dragging.

Carol Sacks,

Stacy Saling,

Sharon Wienbar,
This is incredibly important to solve, to free more money to be used more effectively

Bob Lewandowski,
MS strikes when many should be enjoying the prime of their lives. Instead they have to battle each day to manage the demands of every day life.

We need to find a cure !!!

Nancy AE Berdych,
Controlling my MS is on-going…the a cure is the answer! ~~~God Bless~~~

(name withheld),

Stephen Yost, Son has MS
My Son has MS. Please find a cure.

(name withheld),
I was diagnosed with MS in 2009. I can't believe how much my meds, which just slow my disease, would cost if I didn't have adequate insurance. Let's find a cure!

(name withheld),

(name withheld), Just another MS patient!!
This is exactly what I've been saying about a year into my diagnosis!! Drug studies go on and on indefinitely, yet there are no drugs in the studies that CURE MS! Same for all the other degenerative, debilitating and fatal diseases which are growing more and more prevalent.

My entire perspective on the healthcare industry has changed considerably since my diagnosis, and I work for the healthcare industry!! My MS doctor even told me there will never be studies done on food/vitamins/supplements or anything else that does not make money for anyone involved in producing any of these items! It's just wrong.

Sadly, I don't even know if all of us stand up and have our say that anything will ever change!

(name withheld),
A cause for MS must be found so that a cure can be developed!

More money for research into the cause of MS.

David C Grainger,

CAROLYN CORBELLI,

Ilse Evans, (individual)
As someone with a chronic disease(MS), I often find myself stonewalled by or passed around among medical suppliers, insurance reps, and physicians' staff, as I seek help. In those moments I realize that I am the only stakeholder. It feels good to sign a manifesto. Thanks.

(name withheld), NONE
WHAT DIEASE HAS BEEN CURED IN THE LAST 25 YEARS? LIKE POLIO IN THE 50s. JERRY LEWIS KIDS HOW LONG HAS THIS BEEN AROUND? ALL THEY DO IS BUY WHEEL CHAIRS FOR THESE POOR KIDS& DRUG COMPAINES SELL PILLS.

A MAN WITH MS

Tanya Legacy,
I'm outraged by the blatant disregard for the needless suffering and countless preventable deaths that we as a society have complacently stood by and allowed while the pharmaceutical companies continue to line their pockets. When will they "find" a cure? Never. There's no money in it.

Alan R. Stein, N/A
Like millions of other Americans, I live with a chronic disease, which in my case is MS. As a child, I always envisioned that the ST century would bring with it an explosion of dramatic medical advances to overcome ages-old scourges like cancer, heart disease, ALS, MS, Alzheimer's, etc, etc, etc.

But we are now a full decade into the ST century, and cures for these condition are nowhere in sight. And yet there are enormous sums of money and tens of thousands of brilliant scientists working diligently to find cures. This can only mean that there are fundamental and persistent flaws in the flow of information and level of cooperation between scientists. Just as the pre-9/11 era lack of cooperation between the FBI and the CIA resulted in a catastrophic failure to "connect the dots", so too are such deficits in areas like the sharing of information and needless duplication of research resulting in needless suffering and deaths of millions of people throughout the world.

Clearly, there are better ways to coordinate medical research in a manner in which self-interests and take a backseat to the humanitarian goal to ameliorate suffering. We can do much better in progress of making more breakthrough treatments available to many more people at much faster pace than is currently the case. Suffering at this scale should be treated like an emergency, because that is exactly what it is.

Mark Bragga, none
It seems like medical research is geared towards making drugs that treat rather than cure.

Al Grand, http://yiddishgilbertandsullivan.com/
I find it unconscionable and totally frustrating that the trillions of dollars that have already been contributed to finding a cure for multiple sclerosis has not moved any closer to a successful conclusion today than they were fifty or more years ago.

Daniel Glines,

Jerry Newlon, Jr.,

deb hodges,
I am still newly diagnosed with MS and am mortified that my insurance gives 2700 per month for my medicine that is only to slow my symptoms and certainly not cure me. Something needs to give. This is a shame that people can't live a quality of life we all deserve because of that almighty green!

(name withheld), M.S Suffer

Gill Spencer,

ellen, n/a
this manifesto say's it all! Lot's of fine people are dying waiting on somebody, somewhere, to make up thir mind[s] and their profit margine's before acting on the good for other's.ENOUGH ALREADY!

Gayle Mitchell,
I have MS and am becoming increasinly frustrated with what's happening (or not happening) with research.

Tammy Versluis, MRF
praying for a cure!!!

Victor Natale,

(name withheld),
what does happen to the billions spent on this?? Listen up; you all have to live with yourself, if there is some deceit going on right?????

Patricia,
Pharmaceutical companies don't want a cure. It's not profitable. They are one of the most prominent lobbiest with the US government, thus protecting their interest. We need to look for cures in different countries, ie Israel, Japan, Germany.

Gina Galante,

Yvonne Decelis,

jesenia,

(name withheld),
We need to help our own - the sick, the elderly, the homeless.

Maureen Prentice,

Gary Basnett,
When are we going to see as cure for multiple sclerosis! To many promises not enough solutions.

(name withheld),
Please help to speed up a cure for this dreadful disease which is affecting my 21 year old daughter badly

Tina Costanzo-Loreno,
In the search for cures Patience is NOT a Virtue. I'm very grateful for your efforts to untangle all the red tape.

karen hart,

Gayle Hurmuses, A Good Mind
Too much money is spent, and has been spent, for so (relatively) little progress to have been made toward full cures for various illnesses. There are many systemic problems that need to be addressed, Let's get to it.

Kennita Watson,
I think the pace could be accelerated greatly if patients were willing to take risks and to take accept responsibility for what happens if the risk goes awry rather than immediately looking for someone to sue. A 10% chance of serious side effects is just that. If you accept those odds, don't cry foul if that 10% comes up. Just that would probably cut the time for approval by half or more.

Janet Liciardello,
At the rate this is going, I will die with MS. It's frustrating, to say the least, to watch yourself slowly lose the ability to do things and know that change will probably come too late, if at all.

Beverly A Hammons,

Rose Natale,

(name withheld), Myelin Repair foundation

(name withheld),

(name withheld), Diagnosed w/ M.S. 2009
let the research move forward for a cure.

(name withheld), Retired

Esther,
Why is the system so broken?? We need better solutions now.

Nikola Vlahovic,
I have only one request - Do find the cure!

Linda Knox, Mylein Repair Foundation
With RRMS which is progressing as predicted, I would like to see the results of the research moneys provided by government, foundations, and individuals.

(name withheld),

Nancy S,
People with MS need the help NOW!!!!

Brendan Tillinghast,
PLEASE find a cure soon!

tricia tillinghast,
PLEASE find a cure soon!

tricia Galante,
I have MS, PLEASE find a cure sooon!

wayne fenton,
the amount of money mentioned in the video is staggering,if this is only the U.S.A.it is even more mind numbing . understandably it takes lots of money to do research ,it is expensive but realistically someone is not doing something right . people in all categories of illness not only m.s. need hope and relief mine happens to be m.s.
it,s more than frustrating to be told you have an incurable disease , with no treatment ,especially one that works , just what have the drug companies been doing the last one hundred years , i would never propose to tell them how to do their jobs because i am not trained to but with all the resources ,all the intelligence ,and all this money even a carpenter like myself can see there is some thing screwed up a hundred years and no treatment think about it.

Michael L. Pearce,
My son was diagnosed with MS at 26 yrs. old. He is now 39 and just gets worse every year. He keeps a positive outlook and does not show any self pity. His walking and one arm are about gone. To watch your son just go down hill like this is, well I cant find the words to describe it. It is past time to beat this terrible disease. Lets get caring people in charge and forget about the big profits that pharmacutical companies seem to interested in. Where is the cure. Please help anyway you can. It will shorten the time to stamp out this hateful disease. Where is the big time research we need so badly to find a cure.

Tom McQuillen,

Chris Sadowski,
The time is now. Help us find a cure.

(name withheld),

Ran Scot,
We seriously need to review medical patent laws.

Leah Hon,
We (MS patients) need a cure. I have had so much money going out since 1996 for extra medications that I have had to take because of the MS. I never have any money to have fun with (I know times are hard now anyway) but I have had to spend so much more money than people without a chronic disease it's almost like we're being punished for being sick. It's like do I pay my doctor bill or do I pay for my medicine? I'm sick of it!

Sandy,

Rick Rabstoff,

(name withheld),
Please find a cure soon. We don,t have all the time in the world. Life is so short.

(name withheld),

Madonna, non-profit

(name withheld), (patient with \\'M.S.\\')
I have seen the cost of my current daily drug injection treatment double during the course of just over four years. I just wonder, where is all this money going?

(name withheld), retired
alzheimers copd ms hbp leukemia just to name a few in my family. It's time to get a better system

Melissa Oselka,
Please help in finding a cure for MS. We need some accelerated response in research to help the billions of people who have to live with this everyday. I never really understood what MS was, and how it affected your "life" until the day my sister in law was diagnosed with it. No one should have to go through was she did, but I know people (alot of people) do everyday. Please help them in finding a cure soon.

Marcia Pierce, MS victim
I was told 15 years ago when first dxd that the cure for MS was within 10 years. I ran through all the ABC drugs plus Novantrone & nothing helped. I am now paralyzed from the waist down & taking azathioprine. Who would have thought that this older generic drug would stabilize my downward spiral? Let's speed up the process & get the new meds out.

(name withheld),
Find a cure for MS

(name withheld),

Audrey Shields,

Tonia Hodgins,
Help fix my brain because MS has broken it!!!

Jill Nelson,

Stephen Braun, person with MS
All of the recent progress in MS treatment has been symptomatic in nature. With the enormous amounts of dollars being spent on research, there should certainly be some progress regarding a vaccine or treatment to reverse the course and eventually to rebuild or correct the damage already done.

(name withheld),
We need a cure!

Brian Walker,
I have been living with this disease for 23 years and I keep getting worse. Pleasse, HELP ME!

Stephen Schwenker,

Virginia Pratt,
Please stop making millions off extended research and find a cure. Those who have M.S. will support the manufacturer who puts their needs before that of the pocketbooks.

Brenda Pinkett,
I agree with this patient's manifesto and beleive there is too much money spent in research salaries and benefits, and not enough improved medical resarch results being delivered to the patients.

(name withheld), independent
All that $$ as time runs out ...little does the government to help anyone out...Try to save some lives it would be productive that way, instead of wasting our time as lives waste away.

Karen Williams,
This is a great country- let's do this now!

Janine Morgan, living with MS

Richard Hellewell, none
I signing this because, people need help, and some people can't afford the help.

Pam Conrad,

(name withheld), Myelin Repair Foundation

(name withheld), Myelin Repair Foundation
I keep waiting for research to be done on nutrition--why can't someone get Standard Food Supplements, give them to a "test group" and compare the health results with those MS patients taking drugs treatments?
This seems like such a simple test to conduct--why are the billions $$$$ being spent on "research" instead of the "obvious" testing that we could be doing and getting simple positive health results?
I know you probably don't believe me, but my health is one case and you'd find more, if you really truly and honestly search.
Please look into this possibility and contact me. I'm very interested in this aspect.

Jeff Dubois, M.S. patient
I would gladly participate in a stem cell replacement study.

Nick Galante,

Tina Campbell,

Linda,
I am keen to see more research in this area!

Marty Helman, Self
I can't afford to wait and my children and their children can't afford for me to have to wait either. EVERY life is important! If not for me...please, for them!

Kathleen Abbe,

(name withheld),

Eric Miller,

Angie Chapko,

LaVonne,
Have had MS for 32 years, my sister for 28

(name withheld), Private

Cindy Young,
My daughter and her fiance are asking their wedding guests to donate to the Myelin Repair Foundation and the Cystic Fibrosis Foundation, in leiu of wedding gifts.
These are selfless and admirable young people
I'm very proud of them.
Cindy Young

Betty Ann Vivian,
Heal MS as I am sick of the amount of money wasted! I am also sick of having MS!

linda barnett,

tom raveill, self

Matt Westfallen,

Stony2,
Keep up the good work MRF!! Living with PPMS is not easy.

Stony2

(name withheld),
Currently suffering with Transverse Myletits also an autoimmune disease.

DIANE SUMNER,
I have had MS for almost 30 years,and in that time have seen very little change. Wow ,for all the rah rah about finding a cure .....the proof is in the puddin'.....and I haven't seen much of it.I am not a cynic but I can't help but feel that the machine that is behind this whole "find a cure" movement ,recognizes that they are working to put themselves out of work....so why move quickly??Please let's move forward..I love this different philosophy- it's hopeful.thankyou

Catherine Lai,

(name withheld),
Can big pharma and the goverment get out of the way.

JOSEPH MONDELLO, GOLF BREEZE
TIME IS NOW!!!

(name withheld),

Carrie Nelson,

Jason Brown,

Julie Charlton,
I wss diagnosed with a chronic illness more than 8 years ago - MS. The drugs they have now only maintain my condition. Where's the cure?! My mother has Parkinson's - she is deteriorating quickly. Her medication doesn't even maintain her. Where's the cure?!

C J Bogumil, PPMS Action
We are the forgotton of the forgotton.Time for action whatever it takes !

Dr. Mark Langer,

Telissa Thornton, M.S. Foundation

katrina archibald,

Siobhan Doyle,

(name withheld),
Having lived with a diagnosis of MS for the last four years, I now recognize the need for moving theory and research into action and treatment. Lives are being severely impacted, and even lost, while funding languishes. Please do all that can be done to rectify this problem.

Lynne Garner, Donaghue Foundation
I agree with MRF that the research enterprise needs to be restructured to provide more results and to be more focused on actually improving health. Donaghue is working with other research funders toward this goal

Becky K. Quinlan,

Denise Vardakas,

David Maizenberg,

Peggy Tierney, Quorum Consulting, Inc.
Patients need results, not rhetoric. Too many people have waited for cures for too long. It's time to bring all parties together - medical research groups, biopharma, and the NIH - to bring new therapeutics to patients who don't have a moment to lose.

Dennis Smith, NA

Bob Gregory,

Shivani Bhargava, Wellesley College
I hope that this will affect change!! Thanks for putting this together MRF!

Justine Lam,

Diana Preston, Myelin Repair Foundation
The whole reason I joined the Myelin Repair Foundation is because I am very frustrated with the lack of effective treatments/cure for multiple sclerosis!

Laura Reilly,

Ann Pietrangelo,

Fred Schwartz, MRF

Tim Gustafson,

Tim Turner,